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| | Joined: Dec 2009 Posts: 63 "OCF Down Under" Supporting Member (50+ posts) | OP  "OCF Down Under" Supporting Member (50+ posts)
Joined: Dec 2009 Posts: 63 | Hey guys
Hope this finds you well.
I just got back from an appointment with my surgeon. All good thankfully.
I had had a toothache for a couple days, that started to feel like it had spread into my jaw/tongue, then i was convinced my tongue looked weird, and you probably all know the rest.
In the first few months after surgery i got paranoid about every little headache/ulcer etc etc. The last few months i had been good and not worried about anything...(pre-cancer i worried about nothing! so this is all new to me!!!)
Well, a few days into the toothache/jawache i started to worry pretty decently. By sunday night i was a mess. I called my surgeon on monday morning to move my appointment forward (was due for my 1-year anniversary check up next week) and he was able to see me Wednesday. Two days of worry.
I lasted about an hour at work on Monday before i had to go home.
Tuesday morning i went to a GP and got some 'chill-pills' (diazepam sp?). They took the edge off, but i was still hammered from three days of heavy worry.
Anyway, just back from good news with the surgeon. Thorough check up, camera up the nose and all the good stuff....
And in regards to not knowing worry like we know worry - you also havent known relief until you've worried like we've worried. I think i cried for 35 minutes after getting out of the appointment. That's some serious relief.
Peace.
JP
stage 2 scc in left oral tongue. 32 at dx
removed 21/12/09 plus left neck dissection and upper arm flap.
clear pathology 24/12/09
non-smoker
active footballer/surfer
social drinker
lives stress-free!
| | | | | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Aug 2005 Posts: 307 | Even though I'm the caregiver I know just what you mean JP. Every time my husband Ron is through with a checkup on his throat, we both still cry with a sense of relief. Happy you got good news!
All the best,
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | JP, you are not alone. I worry everyday, just try to get by, I am constantly feeling my neck and tongue for anything new.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Happy to hear it was good news Jon. The worrying beforehand and the relief after (including the crying) just goes to show you are normal. Now get back to that stress free life of yours  Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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