| Joined: Mar 2010 Posts: 21 Member | Member Joined: Mar 2010 Posts: 21 | Thanks Charm--but I think it was just because she is so clueless... LOL It got to the point where I just laughed because it was so completly ridiculous!
I have some good ones regarding my MS also--when I had to go on partial disability because I couldn't work full days anymore, I worked half days. Without fail, someone would always say in the elevater when I was leaving "you are so lucky that you only have to work a half day" and I used to tell them--"hey, all you have to do is get a debilating illness and you can work half days too-Wanna switch?"
I had a friend who had bladder cancer and had to have her bladder along with all organs that could be removed taken out --but no chemo. When she healed enouph to return to some activities a "gentleman" in the same dog club walked in, saw her and said "Oh hi, welcome back--you have all of your hair, I was expecting you to be bald" That was so shocking, that even I had nothing to say....
SCC, R Lateral tongue, T1N0M0, Diag: 3/15/10 38 yrs old at diag HPV Neg, Non Smoker Non Drinker 4/12/10 Partial Glossectomy, No Rads or Chemo 7/15/10 excision biopsy L mid posterior tongue - NEGATIVE
| | | | Joined: Jun 2009 Posts: 71 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jun 2009 Posts: 71 | This is why I prefer my pets - Jake and Elwood. They never ever say the wrong thing at the wrong time.
11/1999 SCC tongue - surgery 1/2000 Met(s) in lymph nodes - modRND 2/2000-4/2000 RT ~6 weeks end of 2006 SCC tongue - surgery 1/2008 SCC BOT - surgery / PEG installed 2/2008 chemo & RT 4/2008 last time I consumed solid food by mouth
| | | | Joined: Feb 2010 Posts: 38 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Feb 2010 Posts: 38 | My best friend asked me, "Hey, Barb, cat got your tongue?" I laughed til I cried, then laughed some more.
My brother listened while I explained about the skin graft taken from my leg, and he finally said, "So I guess after this, you'll be running at the mouth."
I know, my humor's a little on the crude side, but, sometimes, ya gotta laugh to keep from crying.
Last edited by beeboppin5; 09-01-2010 05:07 PM.
Teacher aged 48, SCC Left side and floor of Tongue, Dx December, 2009. Stage II T2 N0 M0 Successful partial glossectomy surgery with thigh flap and neck dissection 3/8/10. 6 weeks of radiation tx ended 6/30/10. Happily surviving!
"Get outside every day. Miracles are waiting everywhere."
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | So I called my mom and told her that it was not a lymph, but just a rock hard muscle. She said, "How do they know for sure? Are they going to do anymore testing to make sure?" I then replied, "My ENT was very thorough and spent ten minutes trying to find a lymph node, and all he could feel was a rock hard muscle." She then replied, "Well, how does he know for sure without doing some sort of scan?" Nothing like putting a damper on the shear excitment I had to know it was not a recurrence and just side effect from treatment. I can handle some fibrosis.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Mar 2010 Posts: 21 Member | Member Joined: Mar 2010 Posts: 21 | [quote=walknlite]So I called my mom and told her that it was not a lymph, but just a rock hard muscle. She said, "How do they know for sure? Are they going to do anymore testing to make sure?" I then replied, "My ENT was very thorough and spent ten minutes trying to find a lymph node, and all he could feel was a rock hard muscle." She then replied, "Well, how does he know for sure without doing some sort of scan?" Nothing like putting a damper on the shear excitment I had to know it was not a recurrence and just side effect from treatment. I can handle some fibrosis. [/quote] 
SCC, R Lateral tongue, T1N0M0, Diag: 3/15/10 38 yrs old at diag HPV Neg, Non Smoker Non Drinker 4/12/10 Partial Glossectomy, No Rads or Chemo 7/15/10 excision biopsy L mid posterior tongue - NEGATIVE
| | | | Joined: Mar 2010 Posts: 21 Member | Member Joined: Mar 2010 Posts: 21 | [quote=beeboppin5]My best friend asked me, "Hey, Barb, cat got your tongue?" I laughed til I cried, then laughed some more. My brother listened while I explained about the skin graft taken from my leg, and he finally said, "So I guess after this, you'll be running at the mouth." I know, my humor's a little on the crude side, but, sometimes, ya gotta laugh to keep from crying. [/quote]  LOL
Last edited by Michele71; 09-02-2010 08:39 AM.
SCC, R Lateral tongue, T1N0M0, Diag: 3/15/10 38 yrs old at diag HPV Neg, Non Smoker Non Drinker 4/12/10 Partial Glossectomy, No Rads or Chemo 7/15/10 excision biopsy L mid posterior tongue - NEGATIVE
| | | | Joined: Jun 2009 Posts: 138 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jun 2009 Posts: 138 | I just got a facebook message from a friend of mine who, after hearing I had just gone to Vegas, said, "Glad to hear you're on the recovery side of cancer. Are you done with everything now?" lol - yeah, I'm done with cancer now - been there, done that!! I just had another biopsy last week, but thank goodness it was just scar tissue. Another chunk out of my tongue though and another month of soft foods only. I don't think we're ever "done with everything" are we??
BOT-SCC Partial glossectomy 7/16/09. Stage IV, Rt ND 10/2/09. Teeth out 11/5/09. Port/peg in, 11/20/09. 7 wks rad & chemo, end 1/22/10 lung, colon biopsies 1/9/11 - both cancer colon resect surg 1/10/11 Folfox + Avastin - discontinued 6/11 lung surgery 3/13/12, 5/1/12 mets to liver and bones passed away 9/4/13
| | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | Bloop: One thing I know is that I NEVER stop worrying; anytime something new pops us, I panic. Then I go nuts waiting for results. It does seem to never end. I know I should be thankful that I am alive, and I am, but it's so hard to just forget the past and go into the future. I'm very happy that your test results were good. julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | A few weeks ago, a very good friend came and stayed with us for the night. Instead of cooking, we went out to a wonderful Italian restaurant. The place is small and the tables fairly close. We rarely go out for dinner and pasta is one of the foods Clark can eat.
As soon as we started walking to our table, this young child (6) asks very loudly, "What's wrong with that man's face?" As luck would have it, we are seated next to this child and his family. We ignored him for a while until I couldn't stand it any longer. I leaned over, tapped him on the shoulder and said, "That is a skin graft on his face."
That kid didn't have a clue what I was talking about but his parents surely did. The brat continued to ask again and again and his parents said nothing to him. I was tempted to lean over one last time and say to the parents, "Be a parent and tell your kid to shut the f#@* up!"
I ignored him and he eventually stopped.
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
| | | | Joined: Jun 2009 Posts: 138 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jun 2009 Posts: 138 | OMG - the parents need parenting classes. The kid was just being a curious kid.
My own sister, when I said I wonder what people are gonna think when they see me, that I've been in a boxing match with Tyson or something. And she said, "Oh they'll just think you had a stroke." lol, thanks a lot.
BOT-SCC Partial glossectomy 7/16/09. Stage IV, Rt ND 10/2/09. Teeth out 11/5/09. Port/peg in, 11/20/09. 7 wks rad & chemo, end 1/22/10 lung, colon biopsies 1/9/11 - both cancer colon resect surg 1/10/11 Folfox + Avastin - discontinued 6/11 lung surgery 3/13/12, 5/1/12 mets to liver and bones passed away 9/4/13
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