| | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Jun 2010 Posts: 111 | We are going to Duke this week to be checked out by a new team of dr's (this is my moms 4th recurrence). Perhaps we happen to not like what we hear from them, or just think it would be better to gather a 2nd opinion, and we want to travel to Houston to MDAnderson. Do they offer a discounted airfare rate for your 'consultation' visit and lodging? I see on their website that they do offer discounts to patients and family once in treatment but I was wondering if they extend that to patients that are visiting for the first time.
Any help would be appreciated. THank you for reading
my mom, age 59.
12/08 surgery & 33x rad
4/09 recurrence
5/09 surgery & 35x rad
12/09 recurrence
1/10 surgery. peg tube, trach, fibula free flap
6/10 recurrence. double chemo treatments.
8/10/10 finally at peace in heaven
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | If you are a AAA member you can probably get a good discount from them. Duke is a world class facility it's self.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Emily,
Most airlines only have bereavement faires, however being in hotel management for most of my adult life I'll say that the lodging establishments are more likely to discount for you if they know it's a cancer related deal. It never hurts to ask and explain the situation, every place is different but generally hotels will work with you where the airlines can be heartless bastards.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | One thing we had when we stayed at The Comfort Inn in Columbus was a nice wet floor and cockroaches with no charge added for the company and free footbaths. LOL No discounts tho so we left.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jun 2010 Posts: 111 | When I spoke with MDA they said they do have a travel department. The woman mentioned they have a program with Continental. Ill have to check it out
my mom, age 59.
12/08 surgery & 33x rad
4/09 recurrence
5/09 surgery & 35x rad
12/09 recurrence
1/10 surgery. peg tube, trach, fibula free flap
6/10 recurrence. double chemo treatments.
8/10/10 finally at peace in heaven
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 |
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jun 2010 Posts: 111 |
my mom, age 59.
12/08 surgery & 33x rad
4/09 recurrence
5/09 surgery & 35x rad
12/09 recurrence
1/10 surgery. peg tube, trach, fibula free flap
6/10 recurrence. double chemo treatments.
8/10/10 finally at peace in heaven
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | There is also a site where they will come to your house and clean it professionally for free.
It would be helpful if this info was put on a permanet post under financial. I guess the next list I will work on is places that help cancer patients. There is a list of OCF members under the friends tab for facebook.
Let us know if you got help from any of those sources.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Aug 2007 Posts: 83 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2007 Posts: 83 | I was treated at Duke......fantastic results. Let me know if I can answer any questions or help. Here is some info on lodging: Caring House Adults receiving outpatient treatment at Duke Comprehensive Cancer Center are eligible for overnight accommodations at Caring House. Caring House offers free parking and transportation to and from Duke University Hospital, as well as many other amenities. Caring House charges a nominal, need-based fee. Contact Caring House at 919-490-5449. http://www.dukehealth.org/
Bill Van Horn-53 ex-smoker, social drinker, Biopsy 8/24, Diagnosed 8/30/07 BOT T2N2-B MX Stage IV. Started treatments 10/1/07. IMRT 35 x, Cisplatin - 3 cycles - completed treatment 11/16/07. CT Scans on 1/15/08 all clear Selective neck dissection 1/28/08. All nodes clear.
| | | | | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jun 2010 Posts: 111 | Ive been talking with a lady at the Angel Network and all I can say is WOW. We have a tentative flight on Monday - our Dr appointment at anderson is Tuesday at 7am. All Im waiting of is her Dr to call them and give them clearance, stating that my Mom is able to fly without medical assistance. I cant believe a corporation like this exists. Its really going to help us tremendously as we're already planning on spending a fortune just staying in Houston. the last thing we need to worry about is $$$ on flights, delays, layovers and riding with 100s of other people. Im crossing my fingers that it all works out. Assuming that it does, I'll report back to you all with more details
my mom, age 59.
12/08 surgery & 33x rad
4/09 recurrence
5/09 surgery & 35x rad
12/09 recurrence
1/10 surgery. peg tube, trach, fibula free flap
6/10 recurrence. double chemo treatments.
8/10/10 finally at peace in heaven
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