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Okay, once again time to do something that is both FREE & EASY.
Megan Cannon has spelled it out for you on her sticky post but here is the excerpt from Megan from the three pages:
[quote]OCF's grant proposal has been approved by Pepsi!!

Now its up to us to get the MOST votes to see that this happens! Starting today (Feb 1) through the end of the month (Feb 28th), everyone will get a chance to vote everyday for this grant. So that means you can vote on OCF's grant once everyday for the entire month. As of this morning we were ranked 76th, and we need to be in the top 2 to win the grant.

Here's the link:
VOTE OCF in PEPSI CONTEST

There's several ways to vote:
1. Sign in with your facebook email & password
2. Dont have facebook? You can sign in as a new user with your email
[/quote]
You can only vote once a day for OCF and the rules prohibit registering more than once or using multiple email addresses. There is no need for the voter though to be an OCF member: sign up your friends and family
REMEMBER VOTE EACH & EVERY DAY
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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I voted and will do so everyday. I've also sent out messages to all of my Facebook friends as well as posted a not so flattering pic on my profile to let people see the effects of OC. I hate the picture but it does give a great "shocking" image for people to get off their asses and vote.

I'll push everyday to get others to vote...let's do this thing!


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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OK, it's officially day 2 and we are 76th and getting our ass kicked by "Freecycle"? I mean I'm all about recycling but cmon people...I'm not going to get my ass kicked by a bunch of environmentalists.

Nobody has the heart we do, we've stared death in the face here people! I'm not about to see OCF walk away from this thing with anything less then a check for $250k. So let's get fired up and kick the shit out of this thing!

Let's crank up the awareness people and get our networks involved here.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Send the link out to all of your Facebook friends.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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I just voted again today. Attention OCF posters: please don't be discouraged by our being #76 overall. We are actually #10 in the Health care section of the $250K grant but unfortunately this grant only goes to the top two overall.
Also, in reading the rules again, I discovered that this Pepsi challenge is more complicated than it seems. It turns out that there is a contest each and every month. As long as OCF stays in the top 100, the OCF project will be automatically re-entered into the March drawing, although the vote count goes down to zero.
So while I hope we can win this February, some of our top competitors will be eliminated by virtue of winning.
So this is like a marathon: please please commit yourself to voting each and every day, not only this month but for the rest of the year. Just like brushing your teeth, click on the link and vote
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Oct 2008
Posts: 251
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I just voted. We are now 33rd!


Catherine

2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
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Awesome Catherine! I just posted an update on my Facebook about the huge jump in the ranks and have gotten a big response from my friends. I also went through my friends list and targeted my friends with the largest "friends" count. I sent them all a personal message describing to them how much it means to me and urged them to help get out the message to their networks.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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I just tried signing in as a new member and it looped for 5 minutes. Finally shut it down.

Anyone who is not on facebook have any success logging in?

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Eileen

I am a Facebook resister and had no problem signing up yesterday using my email address only. The site is a little slow in registering you and I had better luck with clicking on the Vote for this Idea button which launched a pop up window for registration. One thing to be careful of is that for some reason, the original registration window's default is "yes, I have a Password" so you have to change that to "I'm New Here" to get prompted to continue registering. Try again?


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Oct 2008
Posts: 251
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Eileen,

I didn't sign in through Facebook and was able to sign in to Pepsi directly using my email address and a new password. I will say that I have had trouble with their site and it has crashed Internet Explorer several times. I could blame this on Vista, but I don't know...

I say, keep trying to log on to their site and signing in!
Good Luck!

Last edited by RPCV; 02-02-2010 03:10 PM. Reason: Changed Windows to Internet. Thanks, Charm!

Catherine

2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
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Eric,

With as many friends as you have on Facebook, we are a cinch to win this! grin


Catherine

2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
Joined: Sep 2009
Posts: 701
Likes: 1
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In addition to FB, I also sent an email to my list of contacts asking them to forward to their friends and family. I am getting responses already. I believe OCF CAN WIN THIS!!

Anita


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
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Eileen

Thanks to Catherine's tip, maybe the problem is Internet Explorer. I always use Mozilla Firefox as a browser - the price is right: free and it's much more stable than IE.
Good luck in registering.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jan 2009
Posts: 1,844
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Catherine I do have a decent number of friends...but I'm picky who I accept on my friends list so the ones that are on there are either Family, OCF people (who I never reject) or are just really close friends.

A few of my friends though have massive friends lists, so I picked out some of the ones with the highest counts and sent them private emails asking for their help in getting the word out and voting. I figure I'll work from the highest to the lowest but send out personal messages to all of my friends throughout the month. This ensures I touch base with them all and not kill them with spam...but get across in a personal way how much it means to me and how they can make a difference with a few touches of a keyboard and clicks of a mouse.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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I don't think the problem is with internet Explorer. I tried several more times during the work day from my office computer and it looped every time. Maybe someone is blocking it during the day or maybe some software on my machine is blocking it.

Anyway, when I tried it from home tonight at 9:00 pm, I got in with no problem. Now will I be able to vote from office computer tomorrow? Can my husband vote from this computer with a different email address?

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Don't know about your office, but my husband and I used the same computer with our different email addresses.


Catherine

2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
Joined: Jun 2007
Posts: 10,507
Likes: 6
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The power of OCF members smile smile smile smile

When we get together and all really want to succeed we can do anything !!!!! In only 24 hours OCf went from #76 to #27. With this kind of jump, Im sure we can get that top spot smile

PS...I had to type in the website address and then it worked.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Okay OCF members, it's another day, so time to vote again.
I just did and we dropped one to #28. We need to be #2 to win this money, but the month is still young.
Eileen: glad you got on the Pepsi site. The Pepsi rules do not prohibit using the same computer by different people, they just define as "fraudulent" the same person using different email addresses or registering more than once in order to vote more than once a day. Just like a real election, you only get one vote, even if you own two or more houses in the city.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Oct 2008
Posts: 251
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We were #27, now we are #28. I thought you might like to see who is now in spot 27 for the 250K.

http://www.refresheverything.com/rabbitrescueohio


Catherine

2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
Joined: May 2002
Posts: 2,152
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OK, I think I just voted from my office computer. It came back and said FOR SURE and something about PROMOTE with FB etc options. I hope I didn't have to do anything more.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Posts: 1,844
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We are back in 27th....but really Rabbit Rescue? I felt better when it was just Freecycle. The wonderful thing is I'm seeing more and more support posts from friends on FB not related to OCF and they are really pumped to see the rankings go up!

Let's go folks, keep voting!


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Eileen

Nope, you did it all for today. But remember, you need to do this each and every day for OCF to have a chance at winning
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: May 2002
Posts: 2,152
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Good. Just sent off that email that OCF sent us to a bunch of my family and friends and asked them to post daily and to pass it along. Every little bit helps. Tomorrow I will send to our local civic group and see we can get some more votes.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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I'll be voting Everyday!!!!

I'll keep reminders out on my fb page so my friends can remember to vote, I only hope that they do!


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
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We are now #22!


Catherine

2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
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I am excited that we are doing so well, but remember this is a month long race. For those of you that have read the Tipping Point, (the bible of how to spread an idea around) you know that it is not the singular act of doing it yourself each day, but the reaching out to other people with large circles of friends, family, co-workers etc. and getting them to partner with us. If you reach a new "hub" person each day it rapidly runs into the tens of thousands of votes as the network expands.

One of my favorite examples in the tipping point book is the example of Paul Revere who you all know rode to warn of the British coming. What most people do not know is that he and 2 other guys rode out to warn people. While the story is told in many fashions, and in a famous poem the details were well distorted, what is true is that Revere got his message to more people than the other two combined. This is because instead of going door to door one person at a time in each town on his route, he rode into each city that he visited and spoke with the one person there who had the most contacts in the city, and then rode on, leaving the detail of door to door delivery to the new "hub" person. This is the beauty of networking and the fastest way to spread an idea ( vote for us)

This is also the premise behind OCF's means to spread oral cancer awareness around the country. Be it about HPV, or annual screenings, the idea is not to tell one person, but to tell those who have huge audiences who will in turn reach many people at one time, until a critical mass is reached. We spend a great deal of time working with/ nurturing, (and seeing that they have the best information) people in the media, with speakers in the dental and hygiene profession that spend time very month lecturing to their peers, and many more examples that are similar. Disciples are the most important people we can develop - they spread the early detection saves lives message like an infection.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Brian, I've read the Tipping Point, required reading in my opinion to anyone doing marketing. Gladwell's approach is what I kind of summed up in my post above on how I'm reaching my circle.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Gladwell's other books are insightful also if you haven't read them. Many applications in both business and life. Doesn't surprise me that you have this on your I read it list... you strike me as the - got to understand the best way to approach it - kinda person.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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RPCV and Eric.... yeah, bunny rescue is ahead of us. Again this is a popularity contest not a measure of what has more social value. As for me everyone knows that I love animals.... they are delicious!

I just had to say that for effect.... For the moans and groans I knew it would elicit. I actually believe that my dog Barkley is sentient. Something people argue against when speaking of animals. But this dog has emotions, empathy in particular when I am sick, he is certainly self aware (one of the core components of an argument on sentience), and aware of his surroundings and his appropriate relationship to the hierarchy of his place in them. His self awareness is really quite developed, and he understands the context of situations he finds himself in, that are occurring in his life. He has hopes, another criteria. (He hopes that his standing by the front door or his empty water bowl will get my attention and elicit the appropriate response.) By these very well established criteria for sentience, which some only attribute to homo sapiens, he measures up. Bunnies? I'm not so sure. Some of my buddies I used to party with?.... also not so sure.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Posts: 251
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Brian,

I always love you perspective. As someone who has a freezer full of the wild and edible, I especially like bunnies.

We are now #22 and the rabbits are #24. Are we the tortoise?

Now let's try to outrun the horses who are #18!

http://www.refresheverything.com/SAVETHEDELAWARESTATEEQUESTRIANTEAM


Catherine

2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
Joined: Mar 2002
Posts: 4,912
Likes: 52
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This post Deleted for what was no less than seriously bad taste.....

Last edited by Brian Hill; 02-04-2010 12:32 AM.

Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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deleted because Brian was too worried about good taste....

Last edited by EricS; 02-04-2010 12:41 AM. Reason: Brian's fault

Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Wow - I can see EricS is taking his Young Frack title seriously. Despite the fact that I think I hold the OCF record for having entire threads shut down due to the nature of the replies I generated, none of my posts have ever been deleted. (Of course I have had a full lifetime to develop the art of going up to the line but not crossing it, while the posters who replied did cross it) Actually that's how EricS & I became such good comrades - the thrill of combat with another alpha male.

Even old dogs can learn new tricks, so I am going to refrain from posting my original response to Brian's insensitive treatment of bunnies. Instead I will take the high road and note that Nova, our beloved bunny of twelve years was one reason my caregiver wife could get through this ordeal. Each night,unbeknownst to me as I lay moaning on the couch upstairs, my wife would go down to the family room ostensibly to pet Nova, and weep copiously while Nova licked up each and every tear from her face. Sure, cynics will say it was the salt, but Nova had a saltlick in his cage. My wife and I know better. We made a point of boycotting several resturants we had planned on eating at in Rome when we saw rabbit on the menu.
Okay, just another reminder to VOTE today for OCF. I saw the rabbit project but OCF still needs our support so I cast one vote and one vote only out of the ten alloted each day, and that vote will always be for OCF

Last edited by Charm2017; 02-04-2010 07:18 AM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Does anyone know how to send an email message about this from facebook? I tried but it did not go through. (sent to my sellf to test)


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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Charm, please note that I was equally insensitive to my ex drinking buddies...... I tend to be an equal opportunity offender, and as I stated I am an animal lover to the exteme, and it was all said in jest.

When I wore a younger mans body, I grew up that part of my life in Missouri where the coming of age thing was to kill your first deer... Little did I realize at the time that occurred, that that was not really hunting. (Though many avid hunters today would disagree with me) After all a harmless animal taken from a distance, that doesn't even sense that you are around, isn't much of a challenge. Shortly after that I had a chance to have my frame of reference completely changed. Uncle Sam gave me the opportunity to hunt something that was as smart (if not smarter than me) and equally well armed. After that experience, which I will not detail, I lost my desire to kill anything ever again.

So I knew this would elicit the several bunny people here to ask for my head, but the temptation to be obnoxious just overcame me in a weak moment. Please note that in realizing the error and political incorrectness of my ways, I deleted the subsequent post about horses. And to Charm and David who is also a bunny person, you have my apologies......


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Charm,

I deleted my own post as I was one of the few people online last night and probably the only one to read Brian's comment. I found his remark quite funny actually and posted a comment that I thought funny. Right after I posted it I saw Brian had deleted his comment for the sake of "good taste". Since his comments were no longer there, mine wouldn't have made sense to anyone reading.

My parents raised rabbits when I was a kid, and like all animals on the "farm" were used for sustanence. I was not a fan and having been witness to the process refused to take part. I believe in "hunting" for food purposes, as a species we've done it for thousands of years and believe that it's a skill that should be taught in the event society breaks down. Those views aside...it was all in jest and I'd be fine with sharing my comments. Everyone has their own views which I respect, but I don't think any of the comments, even those deleted were said maliciously, but all in good fun.



Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Brian and EricS

No offense taken nor apology needed. Actually, I have to plead guilty to eating horsemeat when in Paris. Brian sent me an article about how this violates the American Cowboy ethic which was very good.
My wife,even though a vegetarian, cooked up the horse steak for me that I bought from a specialty butcher shop in Paris that only sells select cuts of horse steak. It was delicious.
I cannot in conscience let Brian take the heat over a bunny joke without fessing up to my culinary secret. As Brian noted in a PM, if we had French members, nothing would have had to be deleted
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Sep 2009
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I've been spreading the word on my forum and other forums that I'm on too. I've asked that they spread the word for us too.


Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
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All right OCFers, Brian, Eric & I have done our best to add some humor into this thread so as to keep the interest going. Now it's time for more people to follow boatswife's example and start voting and get their friends and family to vote
Remember, you don't have to be an OCF member to vote for OCF, all you need is an email address or facebook page.
We can do this with your help.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: May 2008
Posts: 551
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Thanks, Brian. As an Oral Cancer Survivor AND a Rabbit Rescuer, I'm voting for both causes.



Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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Good Morning OCF
As the snow madness engulfs the Washington DC area, I made sure to log onto the Pepsi Challenge first thing just in case our electricity goes down and cuts off my internet access.
We are at #22 this morning - so only need to move up 20 places.
Remember, voting daily for OCF is just like brushing your teeth, except you only need to do it once a day instead of 3x
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Oct 2002
Posts: 546
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Hi all,

Just a reminder that you have to be logged in before you vote. The first day that I voted, I made the mistake of hitting the vote button first. When the login box popped up, I logged in, but didn't hit the vote button again. Big boo-boo. Pretty sure my vote wasn't registered.

So log in first, then vote.

With no disrespect to the previous posters, if you vote for OCF and another group, you're sort of canceling out your OCF vote. Each vote for another contender is sort of a vote against OCF.

If you really feel as strongly about another group as you do OCF, by all means, vote for both. I personally belong to Freecycle, one of the top competitors, but I will not vote for them. As much as I believe they have a good cause, I put saving lives way ahead of keeping trash out of landfills. I just can't see any comparison. And bunnies are great, horses are great, cats and dogs are great, etc., etc., but I just can't feel that their cause holds a candle to saving human lives. Sorry, but my gut says vote for OCF only.

Remember to Vote! Vote! Vote! Every day!!!


Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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Hi there Rosie. I was just about to send you an email about the contest and here you are. Time to crank up your network of friends and get them to vote too.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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ok...i didnt realize i had to sign in first...crap!


Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
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Well we are back up to 21st. For Facebookers I want to clarify a few things to help get the word out to your friends list a bit more effectively.

When you share your "link" it only displays that information in your "Live News" feed and not on your Status Updates. Since a majority of my friends only read their "Status Updates" use your Update Status option and let your friends know they can vote by following the link on your profile. That way you are getting two ways of informing your friends list to vote.

Also, take a few minutes and target your friends with large friends lists...send them private messages asking for their help in voting. One of the most powerful things we have is our stories...some even our images. Sharing these will help rally your friends into voting everyday. What we want though is to turn some of our voting friends into advocates as well and imploring the to find more "advocates" so we can see exponential growth.

Let's keep this thing rolling folks, get the message out there.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Thanks for the tip. I just did what you suggested. One question--after you vote, does the window change because I can't tell if my vote went through. Doesn't seem to be any way to know if one has voted. So if I don't think my vote was counted and I vote again, will I be booted out of the whole thing for voting a second time? Hmmmmmm....



Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
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Anita,

When you follow the link and click "Vote for this" button, it will ask you to sign in or connect with facebook. I just connect with facebook, it will then allow you to vote. and the "Vote Button" will change saying you've voted. It won't allow you to vote more then once for any cause so you won't get booted or banned or anything.

Hope that helps

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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This Pepsi contest is being advertised on TV. I saw it last night and they had it on the channel 6 world news tonight. It apparently will be Pepsi's superbowl commercial. Now that the world will know about the contest, how do we get them to vote for us?

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Posts: 1,301
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I always see the message that goes something like
"Thank you for your vote"...just above the vote button.
I have already done it for today so will check it again tomorrow.


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

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Hi Eileen,

Hope you're doing well. I don't come to the Forum much, but I do get the newsletter. I was going to check periodically for this anyway, because I had forwarded my Pepsi email about it to Brian and Megan back in January. I was hoping they could do something with it. Probably other people let them know about it, too, but I just had to toot my own horn a bit. whistle wink

And to clarify my earlier post, not that it really matters, but I didn't mean keeping trash out of landfills. Obviously trash belongs there. But all the stuff that people throw away that isn't really trash is what Freecycle focuses on. I have given several items away on Freecycle and even received a couple, but I still won't vote for them. Just can't put them on the same level as OCF. They do have a strong presence, though, and may be quite hard to beat.

rosie


Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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Hi Rosie,

Nice to see you posting. You should come back more often. Hope you are doing well.


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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We are holding steady with being 21 or 22. This will not get us a win. Its the same people are voting daily, probably only about 20 of us. Im hoping the newer members will see how important it is to win this contest and vote daily.

Once Amy (Minnies daughter) gets back from vacation, she will help us. She has the spunk of her mother and knows haw to motivate people to help. Thats how we won last years contest.

Im reposting the link. We are located under the tab for $250,000. PLEASE VOTE DAILY !!!!

http://www.refresheverything.com/categories/health


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Is there any way to tell who is in the 1 and 2 slots and how many votes everyone has. It would be nice to know how far behind we are.

When I vote, I get a wise crack like 'For Sure' 'Oh Yeah' and 'That's Right'. I sure hope we have more than 20 voting.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Christine,

I have an army of friends on Facebook that are voting everyday. My good friend (and Mayor of our town) sends out voting messages everyday to his friends circle of over 800 people. I've targeted my friends with circles of over 500 and have a couple of highly motivated "marketers" that have gotten involved with our cause...one friend (again with 800+ friends) also is involved with an organization that supports our troops and has committed to using her "powers of influence" to get the word out.

It's not just us and it's not just who we know...but who they know. I see my job right now as motivating and reminding everyone in my circle not just to vote...but to get others to vote. Where I right now we are in 21st place, if we are motivated, diligent and inspire our friends to advocate for us we can "snow ball" as the others lose steam.

No group of people that I've been associated with has the wear-with-all that we do...they haven't traveled the road we have. We know pain, perserverance and most importantly who we are. That's a powerful thing.

Last edited by EricS; 02-07-2010 01:55 PM. Reason: sp

Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Eric

You are certainly leading the charge on this one. I missed yesterday as our electricity went out at 2:30 am and with 24 inches of snow, the electric company has been trying very hard but our cul-de-sac was not even plowed, so I was surprised and delighted to be able to vote today after all.
If we had a dozen like you we would be number one.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Boy am I glad to read your post Eric!!!! Thanks for enlightening me and everyone else here. It shows what one person can do and the network they can create. We need more like you to get this going. Im thinking that if we cant get close to the top spot now then we will be too far behind to catch up. I sure wish they would print the number of votes each idea had. I also wish my networking was as successful as yours. Im trying and so far have several people voting daily.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 3,082
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Christine

Bear in mind that this is a marathon not a sprint. We are ranked high enough that OCF gets a brand new second chance in March. Not a reason to slack off, but a reason to hope that we can build up a strong base that votes daily.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jan 2009
Posts: 1,844
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Charm's right that it's a marathon and not a sprint. I don't think that we should have next month in our heads though. It's hard to keep people, especially those that have a casual or less then casual experience with our disease, motivated to keep waiving the flags. The time is now.

What shocks me however is that I've laid out how I'm doing things for others to follow, yet find more posts on my Live News Feed and Status Updates about this contest from my friends NOT associated with OCF. Now granted I have more non-OCF friends, however I also know the list of everyone from OCF on Facebook (thanks Christine) and know who's not posting. I actually scroll through both Live and Status feeds and see who's doing this and can tell you on Facebook who is really going after it.

So I would challenge OCF'rs to a higher standard then that of my other friends. Those people didn't experience the hell that was treatment, they don't know what it's like to watch their loved one lose their tongue or face or their ability to eat, drink or talk. So why should we expect them to waive a flag or be more enthusiastic then we are willing to be ourselves? I would expect OCF'rs to be the example, to take the lead and to inspire people to care and act.

I'm stepping off my soapbox, but I'm so "Frackin" fired up right now I could go twelve rounds. Let's do this thing, glove up and kick the shit out of this contest! Who Dat?

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
MeganCannon
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Thank you all for your dedication and support! We are ranked #21 this morning and only 21 days left to go. Its time to crack the whip!! If anyone has any original ideas to help us spread the word, I'd love to hear! Last week I sent out an email to everyone on the forum list which reaches over 6,000 emails. Friday- the OCF newsletter went out which reaches over 4,000 people. I've sent out emails to everyone (personal and work related) that I've ever emailed encouraging them to vote. My friends and family have done the same and I post the link on my facebook page everyday.

FOR THOSE WHO HAVE A FACEBOOK PROFILE- If you go to our pepsi refresh page today you will notice a button under "Promote this Idea" that says "Install the Application" this allows you to install the Pepsi Refresh application with the idea that you support onto your facebook page! I encourage you all to do this!

Ways to spread the word more:
- My local Starbucks has a bulletin board for businesses and community members to post flyers and cards. I'm going to create several flyers to spread around locally. I would love to email you all the flyer to post around in your work place, school, local grocery store, or where-ever! Please email me: [email protected] if you are interested.

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Okay, I don't know why I never thought of doing this earlier but I have a carepage of where I posted my cancer journey while going through treatments and it would notify all my family and friends across the world when I would post something. I have I think about 400+ people registered (from my local town to the UK, to Poland and all over USA), so I will post a message for everyone to vote daily and give them the link. I hope it will make a difference!

BTW I noticed we were at 20 this afternoon!


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
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I just went to vote for the day and we're sitting at 20!!


Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
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Yippeeee moving up to #20!!!!!

Do we have anyone on here that has school aged young children? It would make a great class project to get involved with the voting. Anyone involved with any organizations or churches who would get the word out quickly to vote for OCF? Since newsletters are usually planned well in advance, word of mouth works.

I have some of my friends working on promoting OCF. Ive checked up on my friends and they tell me they are still voting daily. Eric has quite a network going with the promoting. Wish I had more contacts to help.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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I agree with Eric. This is our shot, This month. Pepsi's marketing team really had a smart idea here. 30 times a person has to come and see the Pepsi logo, hear that Pepsi is doing good in the world etc. and the number of email address they are collecting for future marketing plans has to be astronomical.

But most people, even me, have a life besides this, and while I am obsessed about this, if it wasn't my cause, I would be way less enthusiastic about staying with it for a second month. Enthusiasm will wain. That is only human nature. This is THE month to get it done. If we give it our best shot and don't make it, there will be other opportunities that we can channel our energies and those who join with us as friends in our extended networks, to make happen. We are asking for a daily commitment already.... another month? I think that we will have gotten from people a lot already, and they won't be there as strongly. This is the month.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Bringing this back to the top. Please remember to vote everyone.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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I agree with Brian and Eric that this is indeed the month to push and win. and yes enthusiasm will wane. Still I had gotten the impression from previous similar efforts that when we are #20 and need to be #1 or #2, that some posters get too discouraged. With the recurrence, I have gotten used to always having a plan B, hence my mention of technicality.
Vote, Vote vote.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

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Yesterday was a great day for OCF on the Facebook end...well done. Even with the changes on Facebook (ugh) there were several posters from OCF on my News Feed.

Christine had great suggestions as far as getting the word out, students and religious organizations. Larger companies are taking a different approach to marketing towards the younger crowds (16-24y/o) by using "campus advocates". Basically they give a student an internship and have them raise awareness on campus, driving others by word of mouth and relationship. The companies will generally choose a high profile, student "leader" for this. It's highly effective too as word of mouth is the most effective form of advertising and it's hard to find a more driven force then "youth with a cause".

The same can be said with religious and faith based groups who wish to make a difference...historically speaking there is not a more powerful influence.

This being said, it's worth talking with either teachers or students to help drive voting or faith based groups. Key thing here is talking and relationship...motivating people to action usually takes more then a flyer or AD. Think about how often we see print or tv ads and ignore them due to how often we are inundated with them. Now ask yourself when the last time you saw a movie or bought something from a friends recommendation...

Way to step up guys let's keep rollin.

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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I was thinking of students last night. How about all those dental students that keep organizing the walks at least in Philly and NYC. Brian or Megan - do you have any contacts you could you to get them moving?

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Christine,

There is a more direct link. It eliminates two steps in the process, takes you directly to the OCF page. I know eliminating two clicks seems insignificant, but the quicker and easier it is, the more people may stick with doing it daily.

http://www.refresheverything.com/oralcancerfoundation


Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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Wow, great ideas. I'm putting on my thinking cap to see which groups would be a possibility but most of my close circle have died (Cancer, AIDS, car accidents, murdered in street robbery, etc) and my secondary circles are problematic in actual follow-thru on daily voting.
While it is very sad to see such young people in the prime of life like Suzanne and EricS (no slight to any of the other wonderful young posters, I got to run as my wife's computer just crashed with blue screen of death and give microsoft XP loop)
it is wonderful to see such energy and new ways of communicating using all the social tools that were only science fiction for me
I voted today just in case we lose electricity again with the new 10 inches of snow
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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We do have several student contacts at NYU, UCLA, USC, Penn State and a few others. I've sent out emails that should have reached to them but I'm thinking today I will send them all personalized emails.

Just reached out to my younger brother's girlfriend who is head of her Sorority at VCU. She said they are always looking for ways to give back to non-profits and this is right up her alley. She will be emailing all of her sisters and encouraging them to post links on their facebook pages as well. I will be looking for other ways to reach out to multiple frats and sorority's today as well.

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Before getting my tooth pulled I spoke to a couple of my "religious" friends. One a pastor of a church in Seattle, the other a music pastor for a "mega church" outside of Chicago. Both were very supportive and promised to help get the word out and get people to vote. I told them both if they fell through on their word I'd tell Jesus on them. smile

More spreading the word tomorrow, without the gauze stuffed in my mouth frown


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Well, I found a video I had my wife take 6 weeks Post Op of my mandiblectomy/flap/nd surgery. I've shared it on my facebook profile with a message for people to vote on the Pepsi refresh project.

For those that are on Facebook, feel free to share it with others...it's not as rough as it could've been so far out of surgery, however it's graphic enough to get a point across. I look like I went a few rounds with Fedor Emelianenko, or Mike Tyson when he was good.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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eric,
i posted it on my wall. thanks for sharing this. i looked this morning. we are still sitting at #20.


Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
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I notice when I come to the forums that you don't see anything about this contest on the main page. I see that there are Sticky Posts at the top of each board, but you have to enter the General board to see the main conversation.

Is this enough to keep this topic at the top of everybody's to-do list? Do most people look at those Stickies each time they enter the board, or do they just go straight to their topic of interest?

I think it would be a good idea to get this on the main page, highlighted in some way, if possible. Is there any way to get a Sticky on the main forum page? Megan? Chester?

Last edited by rosie; 02-12-2010 08:01 AM. Reason: add info

Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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Ok, I'm getting a lot of response from the video I posted and a few of you are sharing it and my profile picture with your friends. Those are powerful tools! USE THEM! Visual aides are the most effective way to promote action, which is why the Feed the Children campaigns have been so effective over the years.

Nobody will offend me by using either of those! I'm encouraging it! I'd like to see more OCF folks sharing that video. I've seen more of my non OCF friends sharing the voting link since posting that and I believe your friends will to once they see the devastation that we are faced with.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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i posted the video and pic on my wall and directly on the walls of my friends that i considered to be "heavy hitters"--750+ friends. im getting a huge response from that. lets hope it makes the difference we need.
thank u so much for letting us share the pic and video. it IS powerful stuff!


Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
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Ok, if we are going to make a move for the top spot it has to be now. I can't help but feel that we could be doing more to win this thing. I see the posts and links from a select few of us on Facebook, I'd like to see more passion there. Maybe it's just the competitor in me that says reach deep and give it more.

We need to stimulate and motivate people to take action and not just vote, but get thier friends to vote. Images are the best way to get the stimulation going...and persistance and well phrased quotes are great to motivate. If we take these last 12 days and really drive it, play to heartstrings and be persistant I think we are close enough to make a play for it.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Thanks Eric, for all you do!

Here is the link for voting.

VOTE FOR OCF!


Catherine

2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
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That site wouldn't let me in for the last 3 days. GRRRRRR It just told me it isn't available tonite.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Jim,

I just opened the Pepsi site's "sign in" page using the above link; no problems. I guess you should keep trying!


Catherine

2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
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Jim
I have voted on the site each and every day except when we had no electricity and it has always been up. Here is the link I use although it does take you first to the OCF page, and you click on vote then a pop up window to sign in comes up, then you vote. OCF PEPSI
Damn computers
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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I had no trouble at noon yesterday, but at 5:30 pm couldn't get in for my husband to vote. Tried again later from home and it worked so keep trying.

We are now down to 23. May we shouldn't have gone for the big prize.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Go big or go home has always been my motto...kind of wish my cancer didn't follow that thinking but what can you do?

I read a comment on one link saying they didn't know what else to do to push it over the top, but the only words originally shared with the link was "vote". People are visual and emotional beings and to solicit a response, generally you have to stimulate visually or emotionally. When sharing your link or email...try to solicit an emotional response.

Example, Today I thanked all of my friends for helping me and getting the word out...then I played to heartstrings and shared with them this: "The day I found out I had Oral Cancer was the Second worse day of my life, the WORST day of my life was when I had to tell my 7 year old son I had cancer. He said "But Daddy I don't want you to die!"...it broke my heart. Vote, pass it on."

The response I got from that and the reposting from my non ocf friends was big...it would really take a heartless bastard to not act after reading that. Share that emotion...share an image, like my video. People will react more to that, then a simple plea to vote or a passing note to vote.

Just my $.02


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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An example to the reaction I got from one of my friends friend to her sharing what I posted above:

"Rick Block: Wow Eric I feel like you just grabbed me by the throat and squeezed till I felt it clear down in my heart. I will pray for you and your son. I also voted."


We have experiences that most can't fathom...use them.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Yesterday my husband and I had dr appointments in the same bldg. so I quickly made up cards to put in the offices. I didn't have any printable cards (which I will get today) so I made a table in Word and printed them on some white card stock. I left some in dentist's office in the same bldg and asked his wife to email their patients,. In the drs offices I handed them to the drs and staff and left some by the check in/out desks. Hubby took some to give out this Am at services. I have asked friends and emailed many but will give them cards as I see them this week as a reminder.

This was the text which was arial 10pt, centered, page landscape, margins 0.3 top & bottom, 0.5 L & R, 15 cards/page

� To reduce the death rate from oral cancer
� To promote oral cancer screenings
� Let it be known, if found early oral cancer has a 80-90% survival rate


Please vote every day this month

www.refresheverything.com/oralcancerfoundation

Last edited by Malka; 02-19-2010 08:33 AM. Reason: spelling

SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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That is awesome, Malka!


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
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Fri I had to go to 2 different Walgreens. The pharmacists let me put the cards by the register. Also a fiend who teaches at Tulane took some to pass around.


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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Just great Malka!!!


Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!

*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker

LETS MAKE ORAL CANCER HISTORY!
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Keep voting folks. While we are number 25 today, we did go up in the Health category from 10 to 6th. Great outreaches by EricS and Malka - impressive.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Well, we took our best shot at this. You all did a great job of trying to pull together large groups of voters. Some of the people that were in the top ten have been at things for decades, and have HUGE networks of people to move towards an idea. All said, rating where we did out of 729 possible choices was pretty damn good.

So we didn't win the award. How many people do you think we got exposed to the words "oral cancer" through this effort that were completely unaware of this disease? Spreading awareness is one of our core missions, and this certainly helped that.

I was particularly impressed with some of the ideas that people put out there, like Eric who has some clear marketing background hidden in there somewhere. I want to thank you all for trying to make this happen.

Pepsi automatically enrolls groups in subsequent months competitions. I think that we should not make any effort to work on the next go around of this. There are several reasons. One is that unlike the Great Non-Profits effort, you have to come back everyday for a month to try to make something happen. To be honest this marketing ploy by Pepsi to get you to see their name and logo every day in a row for 30 days is really asking a lot of people. Also we have no idea published by Pepsi, if one person or a thousand people voted for us each day, or how far behind the others we were at any point in time. Obviously this is by design.... but I think the design stinks.

Lastly I don't want to burn out those that have stepped up for OCF time and time again to help us with things. Another month of this will just burn people out on something we will likely still be far away from having, when I would rather be able to ask them for some other kind of assistance down the road, and not have them feeling like it's a " oh no, not another OCF thing again" when we do.

I thank you all for giving it your best shot, and for being there for OCF once again. This won't be the last thing to come along, and next time perhaps things will turn out better. So even though the foundation will be automatically enrolled in the next voting session - Please let this next one go. There will be other opportunities down the road.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Brian

As usual, I logged onto the Pepsi site first thing, and saw OCF still in the running, albeit 159th for March. I will defer to your judgement that the fatigue factor risk to OCF future fund raisers/contests means we need to let this go as a major project. I know this could not have been an easy decision for you to make. While there are arguments that the same fatigue factor affects competitors plus the top two have been eliminated by virtue of winning, more likely than not, OCF would not win in March either. My sense from the outset was that this would have to be a war of attrition with OCF's major chance one of dogged determination. Unfortunately, I think your assessment is right and we just don't have enough EricS or DavidCPA etc to slog it out for four months or so.
At least this will quickly become moot as OCF will be dropped automatically if it stays below the top 100.
I'm going to keep voting daily anyway, but I will not be posting about it, nor will I start new threads on this second chance in deference to your request. It really is nothing to click a link every day and a sad commentary that such a simple request is too much to realistically ask.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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At one point we were in the top 20, which is a good sign. I know my network could use a break from the constant messaging etc, so I say we hit it up in the next month or so. Then we hit it with bad intentions...


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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I wanted to expressly thank EricS for the way he picked up the ball on this and ran with it. I was impressed.
BTW if you go to the Oral Cancer Foundation main web page, the Pepsi Challenge is still figured prominently with a link to vote. I just clicked on it and voted. I discovered this through the link to OCF on a WTCV channel 9 news web site about Roger Ebert & oral cancer that ended with a link to OCF.
Way to go Brian/Megan
UPDATED LATER IN DAY: This news story is now in the OCF news feed, I was up early before California time to refresh the servers

Last edited by Charm2017; 03-03-2010 01:01 PM. Reason: update on ocf news

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jan 2009
Posts: 1,844
Patient Advocate (1000+ posts)
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Joined: Jan 2009
Posts: 1,844
wow, thanks Charm but I figured I owed it since I missed the voting in the last contest. It was really great to see how my friends connected to it and really took up the "cause".


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
Joined: Nov 2007
Posts: 681
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It seems to be that the top winners got there bcause their initial votes were large. If a cause did not get in the top 10 or 20 most people probably did not take the time to look further. Also Pepsi suggested causes after you voted. I wonder how many people we asked to vote were put off by the process.


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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