| | Joined: Feb 2009 Posts: 21 Member | OP  Member
Joined: Feb 2009 Posts: 21 | Joe had a recurrence in his left neck this summer, and since he had already had a rnd and rt there twice, it looked bad. We went to MDA and Dr. Hong agreed with our onco to keep Joe on Taxotere and Erbitux, no radiation and surgery. Our radiation onco decided to give cyberknife a shot, and long story short, it didn't shrink the cancer. He has a quarter size wound on his neck, CT scans still show cancer in the left neck (not anywhere else), and they have given him a break from chemo because he has a staph infection he can't kick in his neck. He is in lots of pain. The whole cyberknife thing was tough because we thought it might do the trick and now we are right back in non-curable land. Just wanted to update as I have been unable to read this board for a bit just because I am super emotional. I have not told my little boys that the end is inevitable (still hoping for a miracle), but I think if the doctors tell us the time is getting short, I will. Thank you for all of your prayers and support.
CG to H, Joe, 30 yrs old. 7/06-stage I SCC removed from tongue. 1/08-radical neck rt side, 8 positive nodes, imrt/cisplatin 6 wks. 1/09-6cm pos node on left neck. IMRT and carbo/taxol/erbitux 6 wks, surgery in April. 7/09-recurrence left neck. Erbitux, taxotere, 2nd opinion scheduled at MDA...
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Angie,
I'm sorry you are having to go down this road...with small children I think it's even harder. The hardest thing I've ever done in this life was tell my oldest boy (8 at the time) that I had cancer. It was all I could do not to break down when he said "Daddy, I don't want you to die!"
My wife and I have been as upfront with my children as we could, my boys are 10 and 6. I've thought about how I would break it to my children many times and I came to the conclusion that I would wait as long as I could. I don't fear death however I do fear the experience of telling my children my time is short.
My thoughts are with you dear, you and your husband and family.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Angie-
Hi there. This must be a big blow. I can only imagine. I am so sorry that the cyberknife didn't get the tumor.
I too am praying for a miracle. Pleae know that you and your husban are in my thoughts and prayers. I am sending you strength to get through this very difficult time.
I wish that there was some way things could be differnt I sure do.
Big hug to you honey.
K
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Aug 2005 Posts: 307 | Oh Angie, I am so sorry to hear about this. This whole ordeal is so scary. Keep praying for a miracle, I know I will be. Make the most of each day you have together because none of us is guaranteed tomorrow. Sending you lots of hugs from Califorina.
Hang in there,
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
| | | | | Joined: Apr 2009 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Apr 2009 Posts: 104 |
GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | so sorry yall are going thru this. sending prayers ur way.
Teresa
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CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
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