| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Donald... Welcome to OCF !!!!! Nice to see your post, good job  Now if we can just get you to add a signature Hint.... Its located under the My Stuff tab (then my profile)
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Donald,
Like you I'm a thin guy. I weighed in at 130 at diagnosis, made it to 138 at start of treatment and weighed out at 130 again so it can be done.
I was stage 1 with a fairly large tumor area of 3 cm but it was non-invasive, which means it did not go very deep in the tissue. I still got 70gy which is about the norm, but no chemo.
Let us know if you have any questions or just feel free in griping if you want. We are all in the same boat here.
Kelly
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Dec 2009 Posts: 24 Member | | OP Member
Joined: Dec 2009 Posts: 24 | hi christine I found the sig part but what do i put in here? donald thank you!!!
nov30squcelldec209tonect no treat yet "positive people +positive thoughts brings positive tomorrows"db
| | | | | Joined: Dec 2009 Posts: 24 Member | | OP Member
Joined: Dec 2009 Posts: 24 | hi christine I found it! now what do I put in here?
nov30squcelldec209tonect no treat yet "positive people +positive thoughts brings positive tomorrows"db
| | | | | Joined: Dec 2009 Posts: 24 Member | | OP Member
Joined: Dec 2009 Posts: 24 | thank you kelly you are giving me hope almost every one is on the larger side and have the other problem of loosing the weight. I never ever could gain it no matter what I tried I too was a heavy smoker and quit after the diagno thanks bud I do like this site keep in touch donald
nov30squcelldec209tonect no treat yet "positive people +positive thoughts brings positive tomorrows"db
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Donald,
Go to the Forum list and click on the second one down (Frequently asked Questions). Then click on "Abreviations for common terms". This will give you a good idea of the abreviations we are using in our signature lines.
You can fill out what you know now and fill in the rest as you figure all this out. It will only take a few visits to the site and reading a few signature lines from others to get you cought up.
As you can see I was a heavy smoker until Dx. quitting helped me gain a few pounds before treatment. it was at this site that they made it clear to me that I realy needed to do that.
Kelly
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Donald, Were you a tobacco user? If not Have you been tested for HPV? And you don't have to fit your Signature Line on one line so please go back and add some spaces. Also make sure every date has a year. I was also a fit, couldn't afford to loose 1 pound, low weight person pre Tx. I didn't get a PEG, had a horrible time with nausea from the chemo and lost 30% of my body weight. I assume no nodal involvement since you are a Stage II?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Dec 2009 Posts: 24 Member | | OP Member
Joined: Dec 2009 Posts: 24 | hello again and don't be puzzled over the albumin test, My ent dr is the one who is really pleased with it because of how thin of a guy I am. It also relaxed her worry about the actual nutritional state of my body knowing all too well that I cannot really afford any weight loss. I know what I am up against and no I am not dazed or confused I can assure you. My mind set is as positive as can be and I am focused on the solutions and not the problem that is why I took the appropriate actions I have taken And going full speed ahead with all my treatments along with all the positives of health that I do possess. hope this clears up your concerns donald
nov30squcelldec209tonect no treat yet "positive people +positive thoughts brings positive tomorrows"db
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | welcome to the forum donald! u have found the right place for support!! please keep us updated.
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: May 2009 Posts: 72 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2009 Posts: 72 | Hello Donald,
I'm so glad you found this site. My husband just finished treatment in Oct. I found this site invaluable for support and help answering questions. Stay in touch as you go through the treatment. People here understand thoughts and feelings specifically about head and neck cancer treatment.
We had our moments of despair and struggles and always found hope in the stories of others. He is on the up and up now. We are thinking of you and sending lots of good thoughts.
Vanessa
Jeff age 49 DX 5/8/09 Tonsil cancer T2N2BMO. Tonsillectomy 5/14/09. TX: Cisplatin 3x's every 21 days w/ 33 Rad concurrent. 2-3 nodes on right neck affected. PEG 7/10/09. Chemo/rad start 6/12/9, TX finished 7/28/09. Extended TX
3 more chemo/Cisplatin/5FU/Docetaxil start 9/11, Clean PET 10/29/09.
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