| | Joined: Dec 2009 Posts: 24 Member | OP  Member
Joined: Dec 2009 Posts: 24 | hello to all and special thank you to christine who is kind enough to show me the ropes of this web site. I am donald breaux and in the beginning stages of head and neck squamous cell carcinoma, primary was located in right toncil.stage 2. I am totally new to all of this including the jargon. I already had my tonsils removed and a mediport and peg tube in place. I am already seeing oncologist for radiation treatments ( have not started as of yet 12-21-09) I met my chemo oncologist today for the first time. My ENT dr has put together a world class team in her own words, after meeting with the chemo dr today I really believe she is being totally honest with me. This dr. resume was a mile long with the ability to practice from louisiana, to uk to dutch. he is listed as a top 100 dr in america. so I am very comfortable with him. From what i have read this will be not an easy thing. I have been trying to boost up my weight. I weighed in at 128 when this first started and actually lost 10 # I have been eating tons of milk shakes with added ice cream and muscle milk. christine I will add the instant breakfast and the peanut butter to this. I hope to gain weight. hello again and thanks for listening donald | | | | | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2009 Posts: 212 | welcome to the family Donald. There is a true wealth on information at this site, it certainaly helped me. I too had a great med team, and they a did a great job, (Clear PET early Dec) but none of them had gone through the hell we have been through. The folks here understand spit, pain, can't swallow, burning neck, being down, being up....all first hand experience!
So read the posta, ask questions keep us informed on your progress.
Steve
70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Welcome Donald! You have come to the right place for support. I know this place has been by home away from home. When the going gets tough we are here for you. They have been here for me and kicked my in the rear sometimes. I needed it thought. I am a stubborn one. Do you know when you start treatment? I just finished my 3rd week.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Welcome Donald. It sounds like you have a great team in place and are ready for the next step which is for treatment to start. Once that happens, I think you will find your anxiety level drops as you will then be actively engaged in DOING SOMETHING about fighting the beast.
In the meantime, remember that cancer is a thief. It wants to steal the days before your treatment as well as many others. Don't let it - it already gets far too many of our days through treatments, surgeries and recovery. Do not let it have any through worry and anxiety!!
Hang in there - you're going to do great with chemo/rad. Beware of trying to picture how you are going to handle these things - we are all very diffferent and you could have a completely opposite experience.
Hope to hear more from you.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 147 | Welcome Donald -
1) Eat, eat, eat, eat
2) Keep a positive attitude
3) Keep yourself busy - don't let Cancer define you.
4) Make every effort to surround yourself with caring, loving family.
Good Luck!!!
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
| | | | | Joined: Dec 2009 Posts: 24 Member | | OP Member
Joined: Dec 2009 Posts: 24 | hello steve nice to meet you and thanks for being here for me, working on when we will start the treatments and will notify you when it does take place from looks of things after christmas holidays. again thank you friend keep in touch donald
nov30squcelldec209tonect no treat yet "positive people +positive thoughts brings positive tomorrows"db
| | | | | Joined: Dec 2009 Posts: 24 Member | | OP Member
Joined: Dec 2009 Posts: 24 | hello angelia and my warmest wishes to your recovery!  I am satisfied with the overwhelming responses at this site which has a calming affect inside me letting an unknown known... thanks for being here for me anglia and please keep in touch donald
nov30squcelldec209tonect no treat yet "positive people +positive thoughts brings positive tomorrows"db
| | | | | Joined: Dec 2009 Posts: 24 Member | | OP Member
Joined: Dec 2009 Posts: 24 | hello donna and thank you for your advice I will try to keep my focus on the healing and not at the problem. I think it will be a tuff road but I am here to win and win I will! keep in touch and again thank you for being here for me donald
nov30squcelldec209tonect no treat yet "positive people +positive thoughts brings positive tomorrows"db
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Donald
Welcome to OCf\F. I remain puzzled about your reliance on the albumin scores as I posted in reply to you, but attribute that to the general daze and haze that afflicts everyone who receives this diagnosis. It won't be long before DavidCPA exhorts you to add a signature line, so I will just say that you could not have found a more informative forum let alone a more supportive venue than OCF. The good news is that you can survive this, especially since you are one of the few to be discovered prior to Stage IV. So take our tales of woe with a dose of salt. Also take some time to explore all the great information on the main OCF site.
Here's hoping you beat this easily
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Dec 2009 Posts: 24 Member | | OP Member
Joined: Dec 2009 Posts: 24 | hello ms carmen and thank you for your advice. I really been eating a hell of a lot more than I have ever in my life! i am a natural fighter and I always loved the words you can't I always proved them different in every situation.http://oralcancersupport.org/forums/images/icons/default/thumbs_up.gif thank again and please keep in touch donald
nov30squcelldec209tonect no treat yet "positive people +positive thoughts brings positive tomorrows"db
| | |
| Forums23 Topics18,168 Posts196,927 Members13,104 | | Most Online458
Jan 16th, 2020 | | |
|
