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Joined: Jun 2007
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Well done and keep up the good fight. Semper-Fi Bob


Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
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the finish line is not far away!

Steve


70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now

Just way glad to be seeing the green side up!




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Good for you and best of luck to the finish line. Your journey thus far sounds remarkably smooth.


Bill . . . SCC - originated in right tonsil, drifted into neck ( 28 lymph nodes removed - one positive ). Radical neck dissection in September 07, completed 34 radiation tx on January 4, 2008. Used Peg. Non smoker, 61, good shape, no previous health issues. Second year PET scan - "all clear".
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Sue, you truly are an inspiration my lady...keep showing who's boss!


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #108967 12-18-2009 05:00 PM
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Sue G Offline OP
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Thanks for the great support and encouragement!

It really helps to keep you on track knowing that this forum is here and full of people who understand the ups and downs of this disease.

I had my last chemotherapy on Friday, it was delayed for 3 days because I had a fever and they couldn't track down the source of it. Eventually it was decided to proceed anyway because of the aggressiveness of my disease. I still have another 3 RT TXs to do on Monday and Tuesday.

My RO called me the day before my treatment started and told me that they were changing my treatment schedule slightly to nine RT sessions a week. What I didn't get told was that the 3 lost treatments would be tacked onto the end. I found that out at the end of my second week that my last treatment will be on the 22nd December. I was a bit depressed about this initially but it is so close that it doesn't matter now.

I also got a naso-gastric tube early last week. I think that occured because my tongue is also being treated this time that has made it impossible to eat and drink, mostly because of pain, but also because of taste. My taste buds being fried has resulted in everything tasting putrid. I don't know how long I will have to use it but I'm sure I'll have it for at least a few weeks when I go home.

Other than for the mucositis, fried taste buds and sore throat I am doing well. My skin still hasn't broken or blistered, so I might stay lucky there with only 3 RTs to go! Overall I'm in better physical shape than last time so I can't see any reason, barring another fever, that I won't be discharged on Tuesday. I can't wait!

Wishing you all a very Happy Chistmas.

Sue


55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva
Sue G #108975 12-18-2009 08:22 PM
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So glad you are doing as well as your are. I know what you mean about the tongue and foods tasting putrid. My tongue is being treated as well, and foods taste nasty. I still have not used my PEG, but I do believe I will in the next few days as I can no longer stand the taste of Boost or Ensure and swallowing liquids is pure torture. Anyway, good luck and I hope you get to go home on Tuesday.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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Posts: 132
Sue G Offline OP
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Hello All,

Just a quick note to say that I finished treatments on the 22nd December and was released from hospital that day. It was great to get home but I did have a tough time up until about a week ago. I still have a naso-gastric tube and have been using that for all nourishment. I am now able to drink water, but my mouth is still in a poor state so I think it will be a couple more weeks until I'm on even a soft diet.

I feel stronger everyday and am getting into a fairly normal sleep pattern. Up until lat week I think I slept, or was in a twilight zone, 75% of the time. My speech is also improving - thick mucous either stopped me talking or dry mouth would.

This time around has definately been more challenging, with a raft of symptoms I never got first time around. I had sticky mucous first time around.....but I had no idea how bad it could get. I swear some of the stuff I was bringing up you could cut with scissors and was rubber band like...UGH. When does that stop??? It seems to be getting better, but it has to be the single biggest annoyance I have.

And PEGS...while I didn't get one I will never be critical of anyone who goes that path. I have vomited up my naso-gastric tube (at home) and had to go into the hospital on New Year's Day to have another fitted and then checked via x-ray that it was in the right spot. Not enjoyable at all!

Anyway that's about it, if any has to be re-radiated I'm happy to answer any questions. It just feels good to finally coming out of that dark tunnel....

Thanks for all the support!

Sue


55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva
Sue G #110610 01-18-2010 07:22 AM
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Posts: 8,311
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Congrats!!!!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Sue, you are a trooper! Way to get through treatment!


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #110637 01-18-2010 03:49 PM
Joined: Apr 2005
Posts: 2,219
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Sue,

Welcome back after the tunnel.

Hopefully every day now, will be better than the day before.


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 15 year survivor.

"Whatever doesn't kill me, makes me stronger"
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