| | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Carol,
I haven't spent much time on the forum lately and when I've been on, I've been checking on our beloved Christine. I am so sorry that I have not seen this thread until now. Please let Jim know I am sending prayers up to heaven for him along with all the positive vibes I can muster. He is a special person who was very helpful and supportive of me when my Mom first got this terrible STUFF! I feel sick reading about all the pain he is in and am so hoping that the cancer is not back. I, too, believe that God is the one in control and know he is watching over Jim, along with his angels. We miss him here and look forward to hearing about his biopsy results. Take care and I will be praying for your family as well.
Nancy T
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Miss you Jim and looking forward to hearing from you soon.
{{{xxx}}}} Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | EZJim
How wonderful to see you posting again Big Guy and still giving comfort to the newbies!!!
We missed you big time here on the OCF board and I am so glad that you are back.
Keep on rocking brother
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Carol,
I am so sorry that Jim is having such a tough time now. I have really been inspired by his postings and his sense of humor. Please send him my good wishes. All my best to you and your family.
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Nov 2009 Posts: 92 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2009 Posts: 92 | Carol,
I'm new to this site, and have never communicated with Jim. I want you (and him) to know that I have gotten comfort and hope just reading his posts to others, and am grateful he has been such a blessing to them (and, vicariously, me). I'm sure there are plenty of people out there just like me - just because you don't hear from them all doesn't mean there aren't scores who've been helped by him without ever being in contact with him.
Prayers and best wishes for you, Jim and the rest of your family.
44 at 10-26-2009 Dx; SCC, T2N2b, St.IV BOT; Rt. Tonsil out; PET 11-12-09 (3 spots); 3 rds Cisplatin, Taxotere and 5-FU started 11-19-09; PEG 12-24-09; 7 wks chemo-rads done 03-16-10. 06-28 CT/PET watching 1 node; PEG out; 11-15 CT - larger; 11-23 PET activity up; mrdc 12-21; 04-01-11 CLEAN SCANS! ; March 2018 new SCC - Meet with surgeon 4-4-18
| | | | | Joined: Jul 2007 Posts: 211 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2007 Posts: 211 | Jim,
My thoughts are with you and can't wait to see you posting again.
Sophie
Sophie T.
CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+
induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear; passed away July 2, 2016
| | | | | Joined: Dec 2007 Posts: 46 "OCF Down Under" Contributing Member (25+ posts) | | "OCF Down Under" Contributing Member (25+ posts)
Joined: Dec 2007 Posts: 46 | Hi!
Jim and I are best mates and he has helped me through some of the toughest times of my life...with his typical style...jokes, fun and love. We have nicknames for each other (which I know he has told a few of you...we call each other ET..evil twins! This is due to our similar and silly sense of humour and the ironic. I know he has been through Hell...but we are ALL with you my friend...you have your own TEAM!!! haha Jim is AMAZING and I beleive he is an Angel walking this Earth to help others, as he has affected the lives of so very many of us. I love you ET...just thought I would surprise you with a message here! I hope you get it, either by reading it, or by another friend passing it on! I hope all of the treatments help..I will keep your spirits up and if it hurts to laugh out loud laugh on the inside. You have so many friends who really love you...so you get well. I add my Prayers to the many sent...and Prayer works. I think you are one fantastic human, and love you as family...Your ET!! Lyn xxxxxxxxxx
PS I am heading in to the hospital for my tongue reduction surgery today! EEEP! Eh! It cannot be worse and if it is...well I will just expect an extra dose of Jim Medicine (Laughter!)..So you have to be well for that...so THERE! HAH! ;o)
Tongue Cancer SCC Removal of 2/3 of right side tongue, neck disection-34 lymph nodes removed. flap for new tongue made from left wrist in 2007. Now (mid 2011) speech has been back to normal since early 2009, and Im back working as a singer. So far so good!
2016... Still cancer free! Yay.
| | | | | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Sep 2009 Posts: 229 | [quote=LynfromOz]we call each other ET..evil twins! This is due to our similar and silly sense of humour and the ironic. [/quote]
Lyn,
I about fell over when Jim said he had an ET! I was like OMG, there are two of you! LOL
Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
| | |
| Forums23 Topics18,241 Posts197,124 Members13,309 | | Most Online1,788
Jan 23rd, 2025 | | |
|
