| | Joined: Nov 2006 Posts: 93 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Nov 2006 Posts: 93 | Margie,
Any news.... thinking about you.
Margaret
caregiver to husband
right tonsil stage 3
35 IMRT TX completed 1/5/2007
PET Scan clear 3/07
biopsy 9/07 clear
1st yr PET scan 12/18/07 clear
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Margie
Im so sorry you are still having trouble so long after tx. Im very familiar with loose teeth and HBO. Please send me a PM if you have questions. I had all my teeth removed due to radiation damage they were all very loose.
As far as you patch goes, its very low. Im on 50mg right now with oxycodone and hydrocodone for any breakthru pain. I forgot to put a new patch on one day and then stupidly thought I didnt need it. Wow was I wrong, you would be surprised at how much pain the 25 works on. Please be honest with your doc and let him know you werent truthful before. He can only help you if he knows the whole situation.
Saying prayers that better days are in the very near future for you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Margie,
Fentanyl is a strong pain med, however your dosage is low. After tx I was on oxy hci, then quit. After my surgery I was dialed up as high as 200mcg/hr with up to 60mg/hr of oxycodone for breakthrough. I didn't understand why I needed so high a med after I was technically cancer free.
Be real with your dr, get help with the pain but more importantly get that spirit up girl! You can do handle this, work with your medical professional to treat and get to the bottom of the pain issue. Most importantly get your mind right.
You are in a fight here woman, and in a fight sometimes it's your will and spirit that see you through it. Keep the faith as my friend Charm would say...and if you need chemical assistance to keep you in the fight, use whatever means possible to win...this fight doesn't have any rules and your opponent certainly doesn't fight fair.
Good luck my dear
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | I weigh 115 now and was down to 98 lbs during treatment and went up to 100 patches. I think even 150. Consult your dr but its important to get your pain under control- Its bad to be in state of stress like that. You need to reserve your energies for healing.
K
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | please tell ur dr about your pain, if he doesnt know-he cant help you. please dont suffer. its unnecessary.
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
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