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Scared #103919
09-21-2009 02:46 PM
09-21-2009 02:46 PM
Joined: Sep 2009
Posts: 1
Michigan, US
J
jenniferelise Offline OP
Member
jenniferelise  Offline OP
Member
J

Joined: Sep 2009
Posts: 1
Michigan, US
So I've been pretty scared the past few days. I basically have myself convinced that I have a cancerous spot on my tongue and have been in tears about it.

I have a spot on my tongue that is about the size of a pencil eraser. It is almost the same color as my tongue, but a little pinker. It is slightly raised but still appears to have the normal texture of my tongue. It is located on the top surface, towards the front and to the left a little. I have had this spot for well over two years. The dentist looked at it a year and a half ago and said she didn't know what it was but she wasn't concerned. She did that light screening for oral cancer which came back negative. When I saw her 2 months ago it wasn't even mentioned. I recently had a friend who has me completely freaked out about it being cancer and the research I have done online seems to point towards the light screening being pretty inaccurate.

I am going to see my primary about it, but in the meantime it seems to be all I can think about. Does this spot seem to fit with oral cancer? I know it is a little silly to ask in a msg board, but I am trying to calm myself down.

Re: Scared [Re: jenniferelise] #103922
09-21-2009 02:57 PM
09-21-2009 02:57 PM
Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
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davidcpa Offline
Senior Patient Advocate
davidcpa  Offline
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Joined: Sep 2006
Posts: 8,311
Gulfport, Florida
ONLY ONE WAY TO FIND OUT IF IT'S CANCER and that is a biopsy.

BTW is your friend a ENT or a Oral Cancer specialist? If not then don't listen to him or anyone else. Now calm WAY down and go see an ENT and get another opinion.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Re: Scared [Re: davidcpa] #103930
09-21-2009 04:31 PM
09-21-2009 04:31 PM
Joined: Feb 2007
Posts: 788
San Francisco,CA
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misskate Offline
"Above & Beyond" Member (500+ posts)
misskate  Offline
"Above & Beyond" Member (500+ posts)
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Joined: Feb 2007
Posts: 788
San Francisco,CA
Hi sweetie. Yes make an appointment and get a referral to ENT or oral surgeon who can take a biopsy if it doesn't go away within 2 weeks. Most likely its nothing but its much better to be safe and find out for sure.

We are here for you! Kate


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
Re: Scared [Re: misskate] #103933
09-21-2009 06:28 PM
09-21-2009 06:28 PM
Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
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EzJim Offline
Patient Advocate (old timer, 2000 posts)
EzJim  Offline
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Joined: Jun 2007
Posts: 5,260
Mingo Jct., Ohio
Get the ENT as soon as you can. It seems you will need nerve pills if you wait much longer.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
Re: Scared [Re: EzJim] #103935
09-21-2009 06:53 PM
09-21-2009 06:53 PM
Joined: Mar 2003
Posts: 1,376
Minnesota, land of 10,000 taxe...
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Mark Offline
Patient Advocate (1000+ posts)
Mark  Offline
Patient Advocate (1000+ posts)
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Joined: Mar 2003
Posts: 1,376
Minnesota, land of 10,000 taxe...
I agree with the "relax" hints. If this has been the same for two years I think you can ease up a bit. Please do see your doctor but don't worry.


Mark, 17 Years survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
Re: Scared [Re: Mark] #103948
09-22-2009 01:22 AM
09-22-2009 01:22 AM
Joined: Jan 2009
Posts: 1,844
Idaho
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EricS Offline
Patient Advocate (1000+ posts)
EricS  Offline
Patient Advocate (1000+ posts)
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Joined: Jan 2009
Posts: 1,844
Idaho
read each post above carefully, now read them again and notice a trend...see an ENT and don't listen to people who know really next to nothing about cancer. See the ENT (ear, nose and throat specialist) but really if it's been on there a while and hasn't caused you any issues or gotten bigger then really what's the issue?


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.

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