| | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) |  "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | You will always belong here, and you are in our prayers.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hi Allan
hope you enjoyed early doors,that was a Rob move if ever i saw one.Cold light of day today so i hope you and Debs are coping with this new challenge and things get underway soon
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Apr 2007 Posts: 37 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2007 Posts: 37 | Hi update ( Cookey moaned at me ) we spoke to my consultant the other day and said why can i not have another scan now as it may show where the cancer is coming from ,they said there is no sign of it in my neck or throat and the new lump in my neck is to small to do a needle biopsy they think that that is nothing to worry about they have said they need to wait to see how big the tumor in my chest gets over 2 months also to see if they can then get to it ,at the moment it is 2cm and hidden behind my heart ,they have told me that it would be highly unlikely that it is from my original cancer in my throat as it should have gone to a closer lymph gland before the one in my chest but they are not ruling this out ,it appears that untill they can access this tumor anything else is of minor concern so i have to wait till the second week in oct for another scan ,has anyone heard of throat cancer ending up in your chest after 2 years free i cannot find anything on the Internet , bye for now Allan
age 52 heavy drinker and heavy smoker stage 111 squamous cell at base of tongue trying to give them all up ,8 lot of cetuximab and 35 lots of radiation , gave up smoking at the start of treatment. only drink now in moderation
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Allan, it seems that have a lot of good questions that need answered. I pray that someone can give you the answers and that everything will get brighter and better for you. yoy are in my thoughts and prayers.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Well done big man
i am sure the brains on here will come up with some answers for you.
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Feb 2009 Posts: 88 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2009 Posts: 88 | I just love that we have the little lady Liz who is such a big strong woman that all she has to do is growl ( Cookey moaned at me ) and these men jump. Good luck Allen and go get em Cookey.
CG to daughter Brandy age 31 initial dx 10/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
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