OP      Platinum Member (300+ posts)    Joined:  Sep 2008  Posts: 489  |    Thank you everyone - I understand this much better now.  All of this time I have thought that I was really doing well with my swallowing and I can now conclude that I am, but that I still have to be very careful and pay attention to the aspiration (spelled correctly this time thanks guys - I am a spell check addict).  
  What upsets me is that because we did not move on to the thicker liquids I probably did not get an answer to whether my esophogas needs opened up or not.  
  The good news is that I had my first PT yesterday that included the light massage and stretching for the neck.  I could feel a difference already and slept the entire night for the first time in many months.  I go back 3X a week and am doing the exercises at home so I hope that I will see even more improvement.  Karen I hope that you are right about it helping my swallowing too.
  Pete - other than the fact that they removed part of your flap after this operation, we now have the same things to work with.  I have just a little nub of my mobile tongue on the right and the base of the tongue.  I am surprised at how many different tastes that I do have.  Please be careful doing your self tests, even though I'm sure that you know what you are doing, I would hate for anything to happen to you.
  Patty        
48  SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin  Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula  35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace 
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