Charm,

In the past I too would have wanted someone's head on a platter for the experience that I had in the hospital. Maybe it is dealing with this disease that has created a kinder, gentler Patty, but whatever it is I found that explaining the situation to them and hoping that someone else did not have the same experience made me feel better. I might have felt EVEN better if they had done something like given me one free night, but I was pretty sure that would not happen.

I had trouble following the part about the basement also. Maybe more of a Who, what, when, where approach would make that clearer. I requested that the head of the hospital personally see me. I was seen by the head of the nursing staff, but I always believe that all you can get if you ask is a no or something a little less. I do like your reference to the fact that the Head of the Hospital may be too busy, but I hope that he is not too busy and addresses your concerns personally.

So many hospitals and medical facilities are concentrating on the "patient experience" now. It is a major revamping going on here in every doctor's office and hospital. They will only improve if we as patients inform them and make suggestions.

Patty



48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace