The only way we will get it recognized is to just keep telling enough people and letting them see what we go thru. I put brochures and phamplets in Hospital waiting rooms, Dr offices and anywhere I can think of. I have to get more of them from Brian because I am hitting 2 different Hospitals for this anneurysm work.

Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here