"OCF Down Under" Platinum Member (300+ posts) Joined: Mar 2008 Posts: 404 Likes: 2 | I couldn't agree with you more Patty.
The devastation that OC can have on our lives and in its aftermath is life changing and a difficult challenge we have to face every single day. For many of us the simple things in life like no longer speaking clearly and eating a normal meal have now become something we have to struggle with daily, and in some cases now only a dream.
And for those who have had OC and have had to have a trache to breath with know only to well how painful this disease is.
Whatever impact OC has had on us, greater awareness of this beast is overdue.
Karen
46 yrs: Apr 07-SCC 80% entire tongue removed,T4N1M0 Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs 30 x rad,6 x Cisplatin, 30 x HBO Apr'08- flap Recon + ORN Mandibulectomy (hip bone to reconstruct jaw) Oct'08 1 Plate out-jaw Mar'09 Debulk flap Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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