Pete,

That sounds similar to what I am finding now. I have a little bitty part of my tongue way in the back to work with and the rest is sewn down flap. I had some pureed foods last week at therapy and I was able to move them with water. One bite was stuck up front and I managed to get it back and swallowed without making a huge mess which was a vast improvement. I realize that you don't know yet, but do you think that with part of your flap missing will you have difficulty with things getting stuck in an opening where the flap was?

Allegro has the spoon for $160 with $.95 shipping. Still too much. Maybe between the two of us we can devise something that works as well. I thought of using the syringe that I use for my PEG and cut the some of the tip off of it. My therapist is worried that I would have trouble controlling how much I push out into my mouth at a time. I think with practice that could be worked out. I also think that the consistency of the food would make a difference with this method. Really thick things might work better than thinner things.

Patty



48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace