Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | Maybe it is the location of this PEG tube Pete. I don't remember who it was that posted about feeding too fast with the PEG and throwing up, but it helped me a bunch. I was trying to just pour the food and water in the tube, get it over with and go do something else. I kept getting the sweats and throwing up all of my food. Then of course, I had to start over again. I started putting less of the food and more water and taking more time to do the feedings and things got better. For a long time I had to lie down immediately after a feeding or I would get sick, but that improved also.
Now I am able to get enough calories to maintain my weight (all 97 lbs) and I am adding things by mouth in the hope that I will gain weight. Once I am closer to a normal weight I hope to be taking in more by mouth than tube so that I can start to wean off the tube completely and have it removed this summer.
Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
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