Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | As you can imagine taste can return differently in each of us but for me I posted about an improvement about 4 months out and then again at 5 months post Tx. I really didn't see much in the way of improvements again until 15 months out and then again at about 24 months and it's held steady since then. I am pretty much back to normal but not 100%.
One thing that I did was overestimate my recovery. For example when I was just 4 months post Tx I think I said that my taste and saliva were about 90% back but as time went on I realized each time I saw an improvement I still felt like I was 90% back so I guess I was wishfully thinking and wanting my recovery to be better than it really was but it's hard, for me anyway, to put a percentage to any phase of my recovery because I can't remember what 100% was like anymore and I don't know how much more it would take to be there. Ninety percent sounds a lot better than fifty so I'm sticking with that.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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