Supporting Member (50+ posts) Joined: Oct 2007 Posts: 83 | Sandy, It sounds like you're up for the same routine I went through. We did three rounds of chemo then did TOMO radiation treatments. Got rid of the BOT cancer but it came back on my Lymph nodes 8 months later and had it removed. Day at a time, try to be as positive about it as you can and it will be over before you know it. The group here helped me alot with feeding through my tube and eating again afterwards. Do you have many fillings in your teeth?? I do and the radiation really burnt my tongue...I got some of the little cotton rolls the my dentist uses, stacked two on top of each other and wrapped them with a piece of tape and made like a bite-wing. Put them inside between my tongue and jaw on each side and it really helped to keep it from getting burnt again.
Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
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