 Supporting Member (50+ posts)
Joined: Jan 2009 Posts: 97 | Hey Sandy,
Sorry that you are here with this kind of news.
Mine was tonsils, BOT, nodes in the neck. They did remove the nodes, lots of tonsil and part of the tongue, but not nearly 80%.
I don't notice the tongue, but seem to miss the tissue from the throat as well as functioning saliva glands. (Xerostomia). This seems to continue to improve a little at a time.
After about 2 years I seem to be able to swallow lots of things that aren't dry and I am very grateful for a dentist that refused to let me give up on the teeth.
Finding this group of people early is a true stroke of luck for you, I wish I had.
Be watching for ya, good luck!
UncleVern
ENT conjectures before, no PET approved by HMO. Metastasis 11/06. CT 2/07: mass RT sub-mandibular gland. 7 CM mass/tonsil, base of tongue removed, biopsies 2/07 and 3/07. Vein lost, RT face numb. PET scan: spot in chest, un-investigated. Oral surgery 4/07. 3X Cisplatin and 32X IMRT from 4/07-5/07.
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