 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Sandy,
How were you diagnosed?
You say they are going to remove 80% of your tongue and the Primary is BOT?
What have they said about the nodes...size...any surgery planned?
Do you have a history of tobacco use?
How are your teeth and have you been to see a dentist familiar with the effects of radiation to the OC?
Before I would let someone take 80% of my tongue I would definitely get at least another opinion and I would get it from a CCC.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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