Thanks for sharing with me Ray.

I started some supplements too as soon as I was finished with chemo and radiation. I am still mostly on a liquid diet also. I just started to experiment again with foods. This week I am playing with pudding.

I feel much better since I started the supplements. Right now I am only taking Shaklee Vita Lea which is a liquid so it is working out well. I am also drinking one or two of their Cinch shakes a day. The program is designed for people who want to loose weight, but the shakes are a complete meal and high protein so I drink them in addition to the Jevity and the Carnation. I want to get some weight back on so that I can remove the PEG, but I have to be able to support my nutrition without it so it is awhile off.

The mucous is AWFUL. I wake up with a dry mouth and a big bunch of it covering my air way. Sometimes I have to get up in the night to get ride of it. Then I have to get rid of it at least 5 times during the day. It seems to be worse in the morning and it takes quite awhile for me to feel human. My radiation just ended Jan 2 so I figure that it will take some time for it to go away, but it can't be too soon for me.

I am researching the CoQ10 and am glad to talk with someone that is taking it. I know that it is hard to say what is helping the most. I am adding one thing at a time so that I can tell if I feel a difference and trying to only add one thing per month. I don't want to become a walking pill factory, but I never want to dance with Mr Cancer again if I can help it.

Thanks Ray.


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace