OP Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | I will look up the two types of chemo that they tried pre-surgery on my tumor that just seem to grow more with each treatment. I lost every bit of hair on my body in the 6 weeks that we were trying chemo and only had 2 treatments 3 weeks apart. I even lost my eyelashes and my hair came out by the handfuls one day. If I had been in a strong wind it would have just blown away. I did not miss shaving at all.
Now my hair is returning, but as they warned me it is very different than it was. I have been dish water blond my entire life and now I have coal black with lots of gray hair on my head. There is a big bald area from the top of my ears to my shoulders from the radiation in the back, but it will come back. The texture of my hair is different also - not as fine as it was. I really could care less I am just happy to have hair to help keep my head warm.
My neck is still very red, but it is not oozing like it was. It is really dry and stiff now and I am putting the Eucerin on the lower part that they quit radiating before Christmas and still treating the upper part with the Biafine. I had to get another humidifier and have it cranked up today trying to bring the moisture level in the house back up. What are the odds that two brand new humidifiers would both go bad??
I am really taking in a lot of water each day and being extra careful with the neck area. I picked up a bag of dog food the other night and my neck split open and started bleeding. It was just the top layer of skin that split, but it was scary. I used to be able to heft 100 lbs sacks of feed and hay around - now 35 lbs of dog food makes me crumble. It will come back.
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
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