"Above & Beyond" Member (500+ posts) Joined: May 2008 Posts: 551 | Lottie,
It took a long while for my appetite to return. At first, I'd get full, or worse, nauseous after just a couple of bites and the lack of taste was so discouraging. I still can't taste a lot of stuff, and some foods just taste like dust, so what I concentrate on, more than anything is texture. If something has good texture, I can tolerate it even if it doesn't taste right.
Foods that have really worked for me have been eggs poached in water over hash browns, soups with pasta and soft vegetables including Asian noodle soups, baked or poached fish, and strangely, slightly soggy cold cereal. And always, always sauce, gravy, ketchup or whatever... it has to, has to be wet.
I've decided that food and eating is, for now, like exercise. Its not especially enjoyable, but at the end of the day, its what's best for me. And I know that it will get better. It just has to!
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08 Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016 Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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