A month ago I wrote regarding mucus that was delaying my husband's recovery. Thank you all for the help and support.

He is now 14 weeks post tx. The mucus and feeling of rubber bands across his throat has subsided, but has not resolved. At least it is not causing a choking/gaging feeling all day long. Mainly it is a problem upon arising and in PM after using dental trays.

Increasing his diet has been very, very slow. I'm wondering how this went for others. He has a PEG - 5 cans 2 Cal/day. No weight loss. We are substituting smoothies for feedings as tolerated. He can swallow solid/soft food but has all the other issues - lack of taste, no appetite, no saliva, etc. We are checking into nutritional & alternative medicine consult.

Does appetite ever return while still receiving tube feedings? The problem is not a lack of food ideas. He wants to eat and is optimistic each time he tries something but doesn't enjoy eating. Each time there is an issue - doesn't taste good, too difficult to chew, too dry, sticks to teeth, etc. Any suggestions?

On the positive side, his stamina is increasing and personality is coming back (it was lost for a several months). I'm glad that others here can understand these issues but am sad that so many have to suffer with this. Lottie


CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin.
1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED
Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016