 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I was seen every 3 months for the first year by at least one member of my team, sometimes all three. My second year it was increased to every 4 months but usually only one member got to see and scope me!! LOL and now I have graduated to every 6 months and I now only alternate between my RO and my cancer surgeon but they still want to do the scope thing. I even kind of miss the more frequent appts because I enjoy talking to them and finding out what's new at Moffitt. I would be a volunteer except they are located 40 miles one way from my home and I have to go thru the City of Tampa to get there. UGH
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| 
