OP Platinum Member (200+ posts) Joined: Sep 2008 Posts: 250 | Eileen,
Yes, they've been keepng a pretty good eye on it. I've stayed where they want me +/- a bit since July 07, when I started on it.
I do think that my lack of appetite these last 2 weeks is due to the pain med - Tylenol 3. Codeine has had that effect on me before. Putting no appetite on top of it being such a job to eat has made it very difficult to do so. I also still have the pain, so add to that getting into the kitchen to make something. I've been very lax and need to force myself before my weight gets any lower. I've already been told that it's a miracle I came out of the 60lb episode with all my organs intact and a second time would almost certainly cost me my kidneys and who knows what else.
I was just thinking - If I remember right, Karen Carpenter had beaten her anorexia, but died because her heart couldn't take the stress it had been through. I guess maybe my very low weight could also be hurting my heart (?)
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08 "A bend in the road is not the end of the road, unless you fail to make the turn" Passed away 12/14/08
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