Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Kendall
Thank you for the update. Its always nice to hear some positive news about patients recoveries. Its wonderful news the tumor is gone. Going back to work even part time can be the greatest therapy there is. It makes you feel somewhat normal again to get back into that familiar routine.
Please try your best not to get overly upset about the scan. There are many many flase positive readings. I know its easier said than done when results dont come back the way you want. The false positive happened to me and it sure can scare you. Inflamation or an infection can cause them to light up wrong.
You wrote about accepting the journey as never ending. Sometimes I start to think that way too. I try to remind myself of how far Ive come and not how far I still need to go. It does help ease the feeling of helplessness and that its beyond your control.
Please remember that OCF is here for support for you as a caregiver too. Being a caregiver to me seems like it might be just as bad as being the patient, maybe worse. Ive been the patient. I dont know how caregivers can do it and always keep up the calm, caring and helpful mannerisms. It must be extreemly stressful to hold in your feelings to put the patients feelings first. Dont forget you can always lean on us here at the OCF forum for support.
Hoping for better news to come about the results.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |