"Above & Beyond" Member (500+ posts) Joined: Jan 2008 Posts: 706 | Kendall-Hang in there. As a fellow caregiver I can tell you that my husband was a real PIA in the beginning. He is about 9 months post radiation and is doing better. He is on a trial drug now and seems to be really better mentally now. The only medication besides the trial drug he takes is a Fentanyl patch for pain. He was a real nudge when it came to nutrition at first but now he is really on top of it. He mixes a can of the Jevity 1.5 and a can of VHC and takes it thru the PEG several times a day. Things still don't taste right and he doesn't have teeth on the bottom so this is the best way for him. He uses the pump and is quite used to it now.
Sometimes tough love is the only thing you can try. I'm hoping that you will get some insight from your support group. There are also many of us here that understand. Stay strong!
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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