Nancy,

I didn't start to get really uncomfortable until about the fourth or fifth week of treatment. Miraculously, my skin remained in good shape until about two weeks after radiation ended and even then it was only a couple of raw spots and some serious dryness. My poor tongue, on the other hand, is still raw and sore nearly six weeks after treatment ended. As everyone one here says, everyone is so different and your results may vary.

Also, as far as the mask, I got to the point where I would take myself away from that room and pretty much fall asleep. I didn't lose any weight during my treatment so the fit never really changed. The amazing thing is, within two or three weeks, the whole thing felt like a distant memory.

Good luck.

- Margaret


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018