 Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | That no taste just burning after the 1st bite , should say swallow not bite, gets your mind wondering if you will ever really taste food again. I have tried anything I can tyhink of and ended up giving the food to the neighbors. LOL They say it tastes very good and will take anything I cook. I am slowly going back to the nothin but good soups, oatmeal. cream of wheat and coco cereal mixed with the cream of wheat. I can get some toast down in smal bites with coffee. Some day we will all be able to eat food. Keep trying.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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