My tongue was on fire for a few weeks as well from the mucositis. I couldn't even drink water because it made my tongue feel like it was on fire. I pretty much didn't take anything through my mouth during that time. Then over a period of a couple of days it noticeably got better, so hang in there. It will get better!!!!
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
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