Thank you all for the responses. We do have a very supportive family that has helped out immensely, from helping out with our one son still at home to having a garage sale to raise funds. Being a man, I have found it very difficult to accept let alone ask for help, but I am getting better. I know I read it on someones signature about this bringing them to their knees and it is so true, this is a very humbling experience where we have very little control and need to turn our lives over to God and the doctors(and I am sorry but I don't deal well with giving up control either).

Pam was scheduled to start the Cisplatin (3 large doses) and the first of the 33 IMRT today but found out that she had an infection at her PEG site so has started antibiotics and treatment has been pushed back most likely to next week. I did ask our MO about getting the weekly smaller doses but was told they don't do that, she has had very little problem giving the larger doses and if they are not tolerated will switch to a "cocktail" as opposed to the smaller doses of Cisplatin.

Just playing devils advocate, those of you that have had the smaller doses, did you still have an overnight stay at the hospital at each treatment or was it given as an outpatient. For my wife the larger doses are scheduled for an overnight stay and my cynical side could see insurance objections to 6 or 7 overnight stays versus the 3 for the larger doses.

Again, thank you all for all the information you share on this website, it definitely let's me feel much more knowledgeable when talking to the doctors and nurses.


Tom-CG to wife, Pam 46@dx
Stage IV Tongue Cancer T2N2C
Dx 6/08, Surgery 7/08, 3 nodes positive
9/08 33IMRT/7Carbo/Taxol
4/09 node biopsy positive, mets to lungs/stomach
5/09 Cisplatin or Cis/Alimta study
6/09 Cis/Taxotere
9/09 Taxotere
1/10 Xeloda
3/10 Cetuximab weekly
6/29/10 lost battle