 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Tom,
It's unfortunate but reality that until all is known about anyone's particular cancer, accurate staging can not be achieved. What is fortunate is that she got and is getting the necessary treatment to hopefully get rid of all her cancer. This is a very aggressive cancer and it needs to be dealt with equally aggressive treatment.
You both have a ways to go and it will be tough but there will be light at the end of that treatment tunnel so keep that in mind. I was a Stage IV and in a few weeks I will be cancer free for 2 years.
Tell us more about her radiation (type, number of times, etc) and her chemo (type(s), frequency) and we can help you both a lot more in the months to come. You have hit the jack pot in finding this site.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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