"OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | I was a little unsure about replying to this one as I did not want to cause any more worry to either of you. I guess it helps to hear all the information and in my case I went in to this whole thing not knowing anything except what I was told at my initial and only meeting with the team. I did not take a lot of that in either. In my case the tracheotomy was one of the more difficult things to deal with for around the first 3 days or so in intensive care. There was a lot of mucus build up and I needed that to be suctioned out quite often. From memory this was more of a problem during the late night/early morning shift for the nursing staff. I had the buzzer and did have 1 nurse get quite annoyed with me and telling me I would have to wait. I though I was going to choke to death. As a lot of people in the ICU are sleeping some of the nursing staff on this shift is able to take it a little easier and I guess I was spoiling it for this one. In any case I was very upset and felt very helpless as I could not even talk. I could cry however (that is tears just rolling down my cheeks) and I also wrote on a children�s white board. Fortunately I was close to the doctor�s station and he came over to tell me that it would not happen again and to use the buzzer whenever I needed to. Thankfully I did not see this nurse again. After around 3 to 4 days 1 of my favourite nurse�s on the day shift showed my how I could do the interim suctions for myself. Got quite a shock when a few days later I saw how much gunk there was in the large bottle behind me. All the best Diane with your upcoming surgery and Karen I am sure your husband will get better as each day passes.
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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