 Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Ray, at least you have part of the tip of your tongue! My 'free flap' tongue is really just a space filler and is sutured (now grown into) the floor of my mouth, so I really have difficulty talking (esp if mouth is too dry OR too wet). However, I can be understood over the phone as long as I don't get frustrated.
Even worse is trying to move food around in mouth(I just started, so I am NOT proficient), in fact I can't even lick the spoon and have to scrape it on the inside of my lip.
Cancer, the gift that keeps on giving!
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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