Platinum Member (300+ posts) Joined: Jun 2008 Posts: 309 | I am home now. They discharged me yesterday. It feels good to be home but I am still trying to figure everything out.
My hardest issue is getting enough calories and fluids down. This is a real challenge. The temporary orbitor or whatever you call it did not have to be screwed in, which ia cool - but it covers entire palate, and thick enough that it creates a challenge to maneuver stuff around it. Add to that, I cannot use a straw because the orbitor leaks air somewhere, and if I try to take fludis straight from cup with this leak I get fluids out the nose (no thanks) .. so I am using a syringe to put the fluids in the right place to get them down - which is doable. don't get me wrong but it is slow and gets less down than I want. Hopefully the new one after this will work better for food and fluids.
Pain wise I am doin ok,, oxycodon 15-20 mg every 4 hrs keeps it regulated so that isn't too bad. My lower jaw gets real sore/tired feeling if I dont make sure I have my neck right but other than that I would say pain aint bad at all.
My throat gets very sore if I dont get pain meds right on the nose of time ... making swallowing almost impossible. this is easing some now but at hospital it got me ticked a couple times - they would wait to give me pain meds till i was really hurting, then tell me I had to take oral ones ... i finally told them look - on time orally - no problem. Late? then give them by injection because I am not going thru even more pain to reduce pain and then waiting another 20 minutes for relief. - they finally understood and put a stop to that vicious cycle.
HAVE A QUESTION: I have never had diabetes but my sugar #s were quite high in the hospital and they were givin' me insulin for it - said it was common after surgery.... the day of discharge my numbers were still at `60 so they gave me a shot of insulin before going home..... should i still be checking this? they dont say anything in discharge papers about it ...
anyways - good to be home and i thank ya all for your ongoing prayers and support.
Last edited by azcallin; 08-13-2008 05:58 AM. Reason: misspells - oops!
Rita - Age 44 wife, mother of 4 - ages 3,16,21,24 & grandma to 1 (R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.
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"Those who think by the inch and speak by the yard, should be kicked by the foot."
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