Platinum Member (300+ posts)    Joined:  Jun 2008  Posts: 309  |    I am home now.  They discharged me yesterday.  It feels good to be home but I am still trying to figure everything out.
  My hardest issue is getting enough calories and fluids down.  This is a real challenge.  The temporary orbitor or whatever you call it did not have to be screwed in, which ia cool - but it covers entire palate, and thick enough that it creates a challenge to maneuver stuff around it.  Add to that, I cannot use a straw because the orbitor leaks air somewhere, and if I try to take fludis straight from cup with this leak I get fluids out the nose (no thanks) .. so I am using a syringe to put the fluids in the right place to get them down - which is doable. don't get me wrong but it is slow and gets less down than I want.  Hopefully the new one after this will work better for food and fluids.
  Pain wise I am doin ok,,  oxycodon 15-20 mg every 4 hrs keeps it regulated so that isn't too bad.  My lower jaw gets real sore/tired feeling if I dont make sure I have my neck right but other than that I would say pain aint bad at all.
  My throat gets very sore if I dont get pain meds right on the nose of time ... making swallowing almost impossible.  this is easing some now but at hospital it got me ticked a couple times - they would wait to give me pain meds till i was really hurting, then tell me I had to take oral ones ... i finally told them look - on time orally - no problem.  Late?  then give them by injection because I am not going thru even more pain to reduce pain and then waiting another 20 minutes for relief. - they finally understood and put a stop to that vicious cycle.
 
  HAVE A QUESTION: I have never had diabetes but my sugar #s were quite high in the hospital and they were givin' me insulin for it - said it was common after surgery.... the day of discharge my numbers were still at `60 so they gave me a shot of insulin before going home.....  should i still be checking this?  they dont say anything in discharge papers about it ... 
 
  anyways - good to be home and i thank ya all for your ongoing prayers and support.  
 
    
Last edited by azcallin; 08-13-2008 04:58 AM. Reason: misspells - oops!
       
Rita - Age 44  wife, mother of 4 - ages 3,16,21,24 & grandma to 1 (R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.  
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  "Those who think by the inch and speak by the yard, should be kicked by the foot." 
 
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