| Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Wilma,
I didn't want the Peg and my doctors went along even though I couldn't afford to loose a pound going into Tx. I didn't find this site until after my Tx was over so I didn't have this site's wisdom to help guide me. It probably wouldn't have made a difference in my decision not to get the Peg because I was in denial and I wouldn't have listened anyway.
That said, I am glad I didn't get the Peg but I will tell you there were times when I could have used it. There are times when my mouth was so sore and the pain meds were making me so nauseated that swallowing anything was horrible to impossible so I would lie to my wife and tell here I was drinking my water and my food when I was not. That led to dehydration, constipation, weakness and 3 trips to the ER to get fluids. The reason I am glad that I didn't is that it did cause me to keep swallowing every day and I never have any swallowing problems.
If I had to do it over again, God Forbid, I would want weekly chemos instead of a big bay every 3 weeks; I would want frequently SCHEDULED IV fluids; I would want to target 3000 cals a day instead of 2000; I would get a Port and I wouldn't get the Peg.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Entire Thread
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new, scare, upset at doctor
| wilma42 | 08-09-2008 04:28 AM |
Re: new, scare, upset at doctor
| ChristineB | 08-09-2008 04:53 AM |
Re: new, scare, upset at doctor
| Cookey | 08-09-2008 04:58 AM |
Re: new, scare, upset at doctor
| wilma42 | 08-09-2008 05:11 AM |
Re: new, scare, upset at doctor
| Gabe | 08-09-2008 05:26 AM |
Re: new, scare, upset at doctor
| Brian Hill | 08-09-2008 05:35 AM |
Re: new, scare, upset at doctor
| wilma42 | 08-09-2008 05:43 AM |
Re: new, scare, upset at doctor
| wilma42 | 08-09-2008 05:46 AM |
Re: new, scare, upset at doctor
| davidcpa | 08-09-2008 12:52 PM |
Re: new, scare, upset at doctor
| wilckdds | 08-09-2008 02:31 PM |
Re: new, scare, upset at doctor
| wilma42 | 08-09-2008 06:23 PM |
Re: new, scare, upset at doctor
| Markus | 08-09-2008 06:56 PM |
Re: new, scare, upset at doctor
| ChristineB | 08-09-2008 07:07 PM |
Re: new, scare, upset at doctor
| wilma42 | 08-09-2008 09:46 PM |
Re: new, scare, upset at doctor
| ChristineB | 08-09-2008 10:32 PM |
Re: new, scare, upset at doctor
| EzJim | 08-10-2008 12:10 AM |
Re: new, scare, upset at doctor
| wilma42 | 08-10-2008 01:30 AM |
Re: new, scare, upset at doctor
| davidcpa | 08-10-2008 03:46 PM |
Re: new, scare, upset at doctor
| wilma42 | 08-10-2008 04:48 PM |
Re: new, scare, upset at doctor
| ChristineB | 08-10-2008 10:04 PM |
Re: new, scare, upset at doctor
| wilma42 | 08-10-2008 10:33 PM |
Re: new, scare, upset at doctor
| ChristineB | 08-10-2008 11:06 PM |
Re: new, scare, upset at doctor
| JAM | 08-11-2008 02:45 AM |
Re: new, scare, upset at doctor
| Markus | 08-11-2008 04:25 AM |
Re: new, scare, upset at doctor
| wilma42 | 08-11-2008 05:00 AM |
Re: new, scare, upset at doctor
| wilma42 | 08-11-2008 05:07 AM |
Re: new, scare, upset at doctor
| Markus | 08-11-2008 05:49 AM |
Re: new, scare, upset at doctor
| debandbill | 08-11-2008 01:32 PM |
Re: new, scare, upset at doctor
| davidcpa | 08-11-2008 01:12 PM | |
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