Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | I just had a large portion of the front of my tongue removed, including the tip, and a free flap installed from wrist tissue. Despite the fact that everything is still swollen enough that I am on PEG tube feeding, I can talk reasonably well, even on the telephone (in fact, I seem to be having more trouble face-to-face than on the phone; perhaps the listener is distracted by seeing me struggle with some sounds).
The front of my tongue is not mobile, but still locked down behind my teeth.
I haven't had the speech therapy yet, but have the most trouble with the letters L and G.
BTW, the surgeons tend to divide the tongue in several sections and then subdivide those, so a statement like "20 percent of the mobile tongue will be removed" actually means something like 20% of the front 30%, not 20% of the entire tongue.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
|