Don -

I am doing as well as can be expected! It was truly stressful thinking my Mom was sick and the relief is tremendous. For me, there is a little bounce back on the weekends, mostly because I'm a little over an hour's drive from my cancer center and to not have to make that trip is a bonus. I do try to get out on the weekends as well, at least to look at something other than the inside of a building. I pack up some cans of Jevity and my meds and my Mom and I drive to someplace beautiful. I love filling my brain with new images and thoughts. It makes sitting in the hospital a little more pleasant.

I have 11 radiation treatments left, and two weekly chemo treatments. It is getting tougher, but so far my skin is in pretty good shape, my tongue is a mess and I'm having to take all my nutrition and meds through the tube. I am being good about doing my swallowing exercises though and I thank this forum for telling me how important that is.

How are you holding up?


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018