Amy:

Im so sorry that you have to go thru this with your mother. Being young shouldnt be a reason for doctors to dismiss you. If it would make you feel better, try to take another person along to the doctor appointments. That way if your mom or you miss something the doctor says, then the third person can be there writing everything down. It might also help for just plain old moral support for both you and your mom.

Minnie is very brave and I know how bad treatments and the side effects can be. There were a few times that I was ready to quit my treatments too. Please tell her we are all praying for her well being. She has gone thru this before and can do it again.

How is her nutrition? Is she getting enough liquids to stay down? Did ashe get a peg tube? If her nutrition and liquid intake is down that could be why she is feeling so poorly too. Chemo makes it pretty difficult to keep things down sometimes, is she taking anti-nasuea meds and pain killers? All these things may help her to feel a little better.

Best of luck with everything, I am saying prayers for Minnie and your whole family.


Christine


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile