Amy, I am so sorry and so sad when I read the latest update. When is Minnie going to have her scans? I really hope they show that all her suffering has been worth it and the cancer has really gone away or at least is showing signs of going away so that she can see it's worth it to continue. I can't blame her at all for not wanting to be sick all the time-especially if it isn't buying her much in terms of extra time. Perhaps when the worst of this latest chemo wears off she will feel differently, though, especially if the scans show the chemo is working.

Based on what you've said, I think at this point it is totally up to Minnie how hard she wants to fight this. What will happen if the scans show the spot on the neck is gone or has shrunk but spots on the lung (which this one doc thinks are cancer) NOT shrinking? That could mean it IS scar tissue--as they said at Johns Hopkins. It seems to me that at that point they should try to do another biopsy to answer the question once and for all.

I don't think some docs take their patient's questions seriously enough no matter what your age, but keep asking and pressing for answers on this. At the very least Minnie needs more firm information about what is going on to make her decisions about future chemo.

Please let us know the dates for the scans so I can send some special prayers then. And give my love to your mom.

Nelie