 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Kathleen,
My recent and only experience with Hospice was very positive and the things that they handle without emotion is unbelievable. When it was obvious that my friend was not going to be cured I emotionally couldn't bear to be with her. I felt quilt, I felt helpless, I felt mad. I just didn't know what to say or do or anything. I felt more comfortable watching how Hospice conducts themselves. I guess there's just some of us that aren't equipped to do these things.
I don't have any answers you seek but I somewhat know what your going thru and I agree with you that you should spend as much time with her as you can even if it's painful because I suspect you will remember this time in a very rewarding way. Make sure they keep her as comfortable as possible until she travels on.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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