Brian,
Something else I thought about. For the two weeks before my surgery, for the 6 weeks after my surgery, and for the first two weeks of my radition, I had ABSOLUTELY NO CLUE what radiation was about to do to me. Until I went for my simulation to begin radiation, I thought I would run in once a day to have an xray of my jaw done, I would get a slight sunburn on my skin and might have a few canker sores in my mouth for a few weeks. My doctors kept telling me that they were going to make me sick again with the radiation but not enough was said.............or it wasn't said in the correct way.
THE most frightening moment for me was the simulation for radiation. No one told me of any mask. Radiation treatment and exactly what it is.........not what it does.........rather the process of it (mask, tethering of arms, etc.) needs to be made clear.


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.