 Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | WONDERFUL idea! There's so much to keep track of with the diagnosis and treatment of this particular form of cancer. And so little time to learn about it all as you are trying to make decisions and stay on top of your treatment.
Despite all the care I took to research things and ask questions, I have some (hindsight is 20-20) wishes for things I should have been more concerned about and asked more questions about at the time (and I also kept one of those notebooks with a log, info. about insurance issues, meds, etc.).
With the collective wisdom of having been through it that we have accumulated here between all of us, this should be a really invaluable resource when it's done.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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