Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | See, but my hair hurt and a chunk along my neckline fell out but I kept the rest and was sure glad later I didn't shave it all off! But I remember Marica telling me about how it feels like your hair hurts and thinking "YES. me too." To me that's what's so valubale about this board is there hasn't been one thing I've run into that hasn't also happened (more or less) to someone else in here and without this place I'd have no way of knowing that.
I would also like to put a plug in for information about issues around making decisions about radiation and chemotherapy if you are stage II. Not a chart saying "do this" but the questions that should be asked, both the ones you may want to ask yourself and the ones you should be asking your doctors.
I also hope there's a section dealing with swallowing issues. This is the one thing I feel I really didn't know enough about when it might have made a difference--I should have had my swallowing checked and gotten exercises much earlier than ended up happening I think.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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