Platinum Member (300+ posts) Joined: Feb 2008 Posts: 341 | I'm so sorry your family is fighting right now. I think it's pretty normal - even though this is a sickness and not a death there is still greiving to be done and anger is a very normal part of that process. Maybe everyone could step back and breath over the weekend. Do yall have a clear understanding of who will be your dad's primary caregiver, who will go to all the appointments and ask questions, be his advocate, etc. In my opinion that person gets the most weighted vote on what to tell your dad. And I'm sure your dad is not an idiot, I would assume he knonws something is going on and would appreciate the truth. My husband knows what he has and that it is very serious. He doesn't know the stats and prognosis conversation I've had with his docs, but that point is not as necessary or as value-added right now. This treatment is sheer hell and the patient needs to know that this is very serious so they don't decide to stop or not have the treatment, but there is no need to add to their emotional pain right now by telling them stats say they have x-percent. Besides they are people not stats. If he wants to point blank ask you - tell him you don'nt know - to ask the doctor. The doctor will know how to best answer your dad.
I hope I didn't come across as too aggressive or know it all. I am truly concerned for your father and your family and I have added you guys to my prayer list. I lost my mom to cancer and was co-caregiver with my father (I even moved in). And it's a really hard thing to watch your parent go through. It is killing me now with my husband, but in certain ways it was harder with my mom.
Anyway - I digress and have started rambling so I'll close now. Just know that this is a wonderful place to be and we will all do everything we can to support you. Please keep us posted.
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO) Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer, TX IMRT 39x, cisplatin 7x (completed 5/1/08), PEG (4/22 - 7/9), No port. Currently in remission!
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