 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | DO NOT LISTEN TO HIM WHEN HE TELLS YOU HE IS FINE AND HE'LL DO "IT" LATER.
Later never comes. He is only telling you that to get you off his back but this is the time you need to be the bitch and MAKE HIM drink fluids and food and this is time that he needs you the most and this is the time that something like VHC comes in handy because he doesn't have to swallow as much to get the necessary amount down his throat. I also doubt they will want to do the Peg or Port now but that's only my guess. There is another alternative to the Peg and that is the nasal tube that only takes a few minutes to insert and doesn't require surgery. It's really meant for temporary circumstances but would definitely help him over the upcoming weeks. I know because I had one for 2 weeks after my Tx was over and it made all the difference in the world for me.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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